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Air Charity Network™
Free Line: 1-877-621-7177 (Responds to calls in English only)
execdir@aircharitynetwork.org
The Air Charity Network™ (ACN) is a nonprofit, volunteer-driven organization that coordinates free, non-emergency air travel for children and adults with serious medical conditions and other compelling needs. ACN is comprised of network member organizations who cover specific geographic service areas and coordinate volunteer pilot flights throughout the 50 U.S. states, Puerto Rico, and the U.S. Virgin Islands. Passenger qualifications, as well as contact information for the affiliate in your area, are available online or over the phone.
Categorías: Childhood, Lodging & Travel
American Childhood Cancer Organization
Post Office Box 498
Kensington, MD 20895
Local Phone: 301-962-3520 (Responds to calls in English only)
Free Line: 1-855-858-2226 (Responds to calls in English only)
staff@acco.org
The American Childhood Cancer Organization (ACCO) provides information about childhood cancer, treatment protocols, medication, and research to families with children or adolescents with cancer. Through hospital and community-based programs, local affiliates provide direct support to patients and their families. Support resources include face-to-face and online support groups, childhood cancer camps, as well as free publications and kits. Affiliates may also provide emergency financial assistance for rent or mortgage payments, car repairs, transportation, pre-paid gas cards, and groceries. More information on financial assistance is available on ACCO’s website.
Categorías: Childhood, General Living Expenses, Lodging & Travel, Scholarships & Camps, Advocacy, Support Groups
Children's Brain Tumor Foundation
Suite 1004
274 Madison Avenue
New York, NY 10016
Local Phone: 212-448-9494 (Responds to calls in English and Spanish)
Free Line: 1-866-228-4673 (1-866-228-HOPE) (Responds to calls in English and Spanish)
info@cbtf.org
The Children's Brain Tumor Foundation (CBTF) is a nonprofit organization whose mission is to improve the treatment, quality of life, and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy for families and survivors. CBTF has a free publication, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, and also co-sponsors conferences, teleconferences, and webinars for families, survivors, and health care professionals. CBTF offers a toll-free support line where you may speak with pediatric neuro-oncology social workers. CBTF's Family 2 Family Network allows families to share their experiences with those having similar concerns. CBTF also hosts and sponsors events, such as the Kids Cruise or Brain Tumor Week at Camp Sunshine, which offer families fun while building relationships within the community. The Children's Brain Tumor Foundation funds research to identify the causes of childhood brain tumors to find effective treatments.
Categorías: Brain, Childhood, Other Cancers, Scholarships & Camps, Educational Programs , Peer/Buddy Programs
Children's Health Insurance Program
Free Line: 1-877-543-7669 (1-877-KIDS-NOW) (Responds to calls in English and Spanish)
CMSOCHIPRAQuestions@cms.hhs.gov
The Children's Health Insurance Program (CHIP) is a state and federal partnership that provides free or low-cost health coverage for children age 18 and younger childhood whose families earn too much income to qualify for Medicaid but cannot afford to purchase private health insurance coverage. States have considerable flexibility to establish income eligibility rules for CHIP, but children enrolling in the program must be otherwise uninsured. Callers will be referred to the CHIP program in their state for further information about what the program covers, who is eligible, and the minimum qualifications.
Categorías: Childhood, Health Insurance (includes co-payments), Health Professional Referrals
CureSearch for Children's Cancer
4600 East West Highway
Suite 600
Bethesda, MD 20814-3457
Free Line: Toll Free: 1-800-458-6223
info@curesearch.org
CureSearch for Children's Cancer is a national non-profit foundation that funds and supports innovative childhood cancer research at all points along the research continuum from fellowships for young investigators to funding research which may lead to new treatments. The website also provides information and resources for patients and loved ones affected by children's cancer. Topics include school support, community support, grieving and palliative care.
Categorías: Childhood, Support Groups
FinAid! The SmartStudent Guide to Financial Aid
FinAid! The SmartStudent Guide to Financial Aid is a Web site that contains comprehensive student financial aid information. Access to FinAid is free for all users and there is no charge to link to the site. The Web site has a page with information about scholarships for cancer patients, childhood cancer survivors, children of a cancer patient or survivor, students who have lost a parent to cancer, and students pursuing careers in cancer treatment.
Categorías: Childhood, Scholarships & Camps
Kesem
Local Phone: 253-736-3821 (Responds to calls in English only)
Kesem is a national nonprofit supporting children facing a parent's cancer. Their flagship program, Camp Kesem, is a free, one-week summer camp for children ages 6 to 18 who have lost a parent to cancer, have a parent undergoing cancer treatment, or whose parent is a cancer survivor. Direct support throughout the year are provided through special deliveries to children, welcome packages, and Family + Friends Days.
Categorías: Childhood, Scholarships & Camps
Medicaid (Medical Assistance)
7500 Security Boulevard
Baltimore, MD 21244
Local Phone: 410-786-3000 (Responds to calls in English only)
Medicaid.gov@cms.hhs.gov
Medicaid (Medical Assistance) is a jointly funded, Federal-State health insurance program for low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Although the Federal Government establishes general guidelines for the program, Medicaid is a state-administered program, and each state sets its own guidelines regarding eligibility and services. Information about coverage is available from local state welfare offices, state health departments, state social service agencies, or the state Medicaid office. The Vaccines for Children Program (VCP) provides immunization services for children 18 and under who are Medicaid eligible, uninsured, underinsured, and receiving childhood immunizations through a Federally Qualified Health Center or Rural Health Clinic, or are Native American or Alaska Native. Spanish-speaking staff are available in some offices.
Categorías: Childhood, Health Insurance (includes co-payments), Medication (includes co-payments)
MyOncofertility.org
Free Line: 1-866-708-3378 (1-866-708-FERT) (FERTLine)
oncofertility@northwestern.edu
MyOncofertility.org is a Web site that provides information on the potential effect of cancer (and other serious diseases) and treatment on fertility, options for preserving fertility, and resources for discussing these issues with a doctor. The Web site features printable documents on topics such as female and male fertility options, and questions to ask your doctor prior to starting treatment. Many survivor videos are available for viewing on the site. Survivors share their experiences, decision making, and advice. Expert videos provide information on basic fertility information, common questions, and information on female, male, and childhood fertility procedures and treatment. The Web site has a physician finder resource to search for a physician who can assist with fertility preservation options. Patients can also call the toll-free FERTLine to talk to a Registered Nurse Patient Navigator who can help patients wade through the difficult decision process of fertility preservation. This Patient Navigator can also help make referrals to outside centers. The Web site is also available in Spanish.
Categorías: Childhood, Health Professional Referrals
The National Children's Cancer Society
500 North Broadway
Suite 1850
St. Louis, MO 63102
Local Phone: 314-241-1600 (General) (Responds to calls in English only)
Free Line: 1-800-532-6459 (1-800-5-FAMILY) (Responds to calls in English only)
pbeck@children-cancer.org
The National Children’s Cancer Society (NCCS) provides emotional, financial and educational support to children with cancer, their families and survivors. Types of financial assistance available include emergency assistance for living expenses, travel costs related to cancer treatment, and college scholarships for childhood cancer survivors. NCCS also provides information and support during and after treatment, including information on the late effects of childhood cancer and a list of long-term follow up clinics. Please visit the website for more details about the services offered by NCCS.
Categorías: Childhood, General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Scholarships & Camps, Support Groups
National Lymphedema Network
2288 Fulton St.
Suite 307
Berkeley, CA 94704
Local Phone: 510-809-1660 (Responds to calls in English only)
Free Line: 1-800-541-3259 (Responds to calls in English only)
nln@lymphnet.org
The National Lymphedema Network (NLN) provides education and guidance to lymphedema patients, health care professionals, and the general public by providing information on the prevention and management of primary and secondary lymphedema. The NLN provides referrals to lymphedema treatment centers, health care professionals, training programs, and support groups. Lymphedema garments are also available for patients who meet eligibility criteria. Limited information is available in Spanish. Information is available on the website or via the toll-free number. If you call the toll-free number, you may need to leave a voicemail message.
Categorías: Childhood, Medical Supplies, Wigs, Prostheses , Treatment, Health Professional Referrals, Peer/Buddy Programs , Support Groups
Prevent Cancer Foundation
Suite 500
1600 Duke Street
Alexandria, VA 22314
Local Phone: 703-836-4412 (Responds to calls in English only)
Free Line: 1-800-227-2732 (Responds to calls in English only)
pcf@preventcancer.org
The Prevent Cancer Foundation funds research on cancer prevention, educates the public about how to prevent cancer, and reaches out to communities across the country with resources and events, and partners with other organizations. The Foundation focuses its energies and resources on those cancers—breast, cervical, colorectal, lung, oral, prostate, skin, testicular—that can be prevented through lifestyle changes or detected and treated in their early stages. The Foundation has several community outreach programs and exhibits available for community events. The Prevent Cancer Foundation has many childhood initiatives and educational programs targeting children and adolescents/young adults.
Categorías: Childhood, Educational Programs
Ronald McDonald House Charities®
One Kroc Drive
Oak Brook, IL 60523
Local Phone: 630-623-7048 (Responds to calls in English only)
info@rmhc.org
The three core programs of Ronald McDonald House Charities® (RMHC) are the Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile. Ronald McDonald Houses are places where out-of-town families can stay while their children are being treated for a serious illness. Families with childhood patients either stay at no cost or are asked to make a donation of up to $25 per day, depending on the house. The Ronald McDonald Family Room program provides a room located just steps from neonatal or pediatric intensive care units. Families of critically ill children can use the Ronald McDonald Family Room to rest, take showers, grab a bite to eat, and even do laundry. Through relationships with local health care providers, the Ronald McDonald Care Mobile program brings cost-effective medical, dental, and health education services directly to underserved children in both rural and urban areas around the world. All services are provided in a state-of-the-art vehicle built specifically for delivering pediatric health care services. RMHC also offers scholarships to students in financial need who have demonstrated academic achievement, leadership, and community involvement. Scholarships are for students in the United States living in areas where there are participating local Chapters.
Categorías: Childhood, International, Lodging & Travel, Scholarships & Camps
Special Love
117 Youth Development Court Winchester, VA 22602 Free Line: 888-930-2707 | Fax: 540-667-8144
Special Love sponsors Camp Fantastic and other retreat programs in addition to creating a community of support for children, teens, and young adults with cancer and their families. Camp Fantastic is a week-long summer camp held in Virginia each August for children ages 7-17 with cancer. For information on Special Love’s programs and a calendar of events, please visit the website or call the toll-free number above.
Categorías: Childhood, Scholarships & Camps
Ulman Foundation
1215 East Fort Avenue
Suite 104
Baltimore, MD 21230
Local Phone: 410-964-0202 (Responds to calls in English only)
Free Line: 1-888-393-3863 (1-888-393-FUND) (Responds to calls in English only)
info@ulmanfoundation.org
Ulman Foundation creates a community of support for young adults, and their loved ones, impacted by cancer. Ulman Navigators (available by phone & email, or onsite in Maryland & D.C.) provide a person-centered approach to patient care. They help to facilitate communication, fertility preservation, emotional and practical support. Ulman sponsors meet-ups and support groups in the Maryland/DC area, offers a national scholarship program for survivors and loved ones between the ages of 15 - 39, and a free run/walk exercise program for cancer survivors.
Categorías: Childhood, Scholarships & Camps, Peer/Buddy Programs , Support Groups
United Way Worldwide
701 North Fairfax Street Alexandria, VA 22314 Local Phone: 703-836-7112 (Responds to calls in English only)
United Way Worldwide is the leadership and support organization for a network of community-based United Ways in 45 countries and territories. The United Way works to advance the common good by focusing on education, income stability, and health. Local United Way organizations create long-lasting community change by addressing the underlying causes of the most significant local issues. Common focus areas include helping childhood patients and young adults achieve their potential, promoting financial stability and independence, and improving people’s health. Information on the Web site is available in Spanish.
Categorías: Childhood, General Living Expenses, International, Lodging & Travel, Medication (includes co-payments)
UnitedHealthcare Children's Foundation
MN017-W400
Post Office Box 41
Minneapolis, MN 55440-0041
Free Line: 1-855-698-4223 (1-855-MY-UHCCF) (Leave a message)
customerservice@uhccf.org
The UnitedHealthcare Children's Foundation is dedicated to improving access to medical-related services for children who have medical needs that are not fully covered by their insurance. The Foundation provides grants for children (age 16 and younger) whose commercial health care plan does not cover or does not completely cover their medical services. Grant applications must be submitted online.
Categorías: Childhood, Health Insurance (includes co-payments)