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There are 4 organizations that may meet your needs.

6144 Clark Center Ave.
Sarasota, FL 34238
Local Phone: 941-927-4963 (Responds to calls in English only) Fax: 941-927-4467
info@iwmf.com
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) provides encouragement and support to people with Waldenstrom macroglobulinemia (WM) and offers information and education programs that address patient's concerns, and promotes and supports research leading to a cure. The IWMF offers many patient publications, including a New Patient Information Package (Info Pak). IWMF-Talk is an e-mail talklist for discussion of every aspect of WM (available in English, French, German, Spanish, Nordic Countries, U.K.). Telephone Lifeline Support provides telephone numbers of IWMF volunteers who will answer questions about their first-hand experience with specific treatment for WM. IWMF also provides telephone and e-mail network lists that connect patients and caregivers. IWMF provides funding to researchers studying a treatment or cure for Waldenstrom macrogloblinemia or related blood cancer. Information on the Web site is available in French, Spanish, and German.
Categorías: Non-Hodgkin Lymphoma, Educational Programs , Support Groups

3 International Drive, Suite 200
Rye Brook, NY 10573
Free Line: 1-800-955-4572 (Responds to calls in English and Spanish)
infocenter@lls.org
The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research and providing education and services to patients and caregivers. Support services include local support groups, online chat, an online patient community, and peer-to-peer support that links patients and their families with a trained volunteer who has experienced a similar situation.

Additional resources include educational programs, publications, home-care services, financial assistance, and information tailored to caregivers. Information specialists are available over-the-phone to assist with questions related to diagnosis and treatment, financial and social challenges, and support. Information is available in Spanish, with language interpretation available in 170 languages. LLS has chapter offices located throughout the United States and Canada.
Categorías: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Health Insurance (includes co-payments), Medication (includes co-payments), Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups

115 Broadway
Suite 1301
New York, NY 10006
Local Phone: 212-349-2910
Free Line: 1-800-500-9976
helpline@lymphoma.org
The Lymphoma Research Foundation (LRF) is a voluntary health organization devoted to funding lymphoma research and providing patients and health care professionals with information on the disease. LRF’s support programs include the Lymphoma Support Network, a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences. Trained staff members are available to answer questions, offer individual support, and search for clinical trials on the Lymphoma Helpline and Clinical Trials Information Service. LRF’s Patient Aid Grant program provides limited assistance to lymphoma patients currently undergoing treatment for help with medical bills, transportation, temporary lodging, and childcare.

The research goals of LRF are focused on engaging and educating junior researchers and bringing together investigators focusing on specific diseases or other focal points. The Foundation has launched several special research programs, including an initiative to study mantle cell lymphoma, a type of non-Hodgkin lymphoma that is especially challenging to treat. The Foundation advocates on behalf of the lymphoma community to increase federal funding for lymphoma research and education, and to ensure access to high-quality cancer care for every patient.


Categorías: Hodgkin Lymphoma, Non-Hodgkin Lymphoma, General Living Expenses, Lodging & Travel, Medical Supplies, Wigs, Prostheses , Advocacy, Educational Programs , Peer/Buddy Programs

Suite 108
20411 West 12 Mile Road
Southfield, MI 48076
Local Phone: 248-358-1886 (Responds to calls in English only)
Free Line: 1-800-546-5268 (1-800-LINK-BMT) (Responds to calls in English only)
info@nbmtlink.org
The National Bone Marrow Transplant Link (nbmtLink) is a nonprofit organization specifically serving stem cell transplant patients, their caregivers, families, and health professionals. The nbmtLink provides information and support services, including a volunteer peer support program, resource referrals for patients and health professionals, and educational guides, videos, and Webcasts. The free nbmtLINK Online Library contains hundreds of journal articles, booklets, and reference materials, as well as comprehensive links to additional online information. Information on how to become a donor is also available.
Categorías: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Educational Programs , Peer/Buddy Programs , Support Groups
Inclusion in this list does not imply endorsement by the National Cancer Institute. Please submit this form if you would like us to consider adding your organization. The form also describes our inclusion criteria.