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There are 13 organizations that may meet your needs.

4520 East West Hwy
Suite 610
Bethesda, MD 20814
Local Phone: 301-215-9099 (Responds to calls in English only)
Free Line: 1-888-901-2226 (1-888-901-BCAN) (Responds to calls in English only)
The Bladder Cancer Advocacy Network (BCAN) is a nonprofit organization dedicated to increasing public awareness, advancing research, and providing educational and support services to the bladder cancer community. Online resources include educational materials, webinars, and access to online and in-person support services for patients and loved ones. BCAN also conducts patient forums at various sites across the country.
Categories: Bladder, Other Cancers, Advocacy, Support Groups

Suite 1004
274 Madison Avenue
New York, NY 10016
Local Phone: 212-448-9494 (Responds to calls in English and Spanish)
Free Line: 1-866-228-4673 (1-866-228-HOPE) (Responds to calls in English and Spanish)
info@cbtf.org
The Children's Brain Tumor Foundation (CBTF) is a nonprofit organization whose mission is to improve the treatment, quality of life, and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy for families and survivors.

CBTF has a free publication, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, and also co-sponsors conferences, teleconferences, and webinars for families, survivors, and health care professionals. CBTF offers a toll-free support line where you may speak with pediatric neuro-oncology social workers. CBTF's Family 2 Family Network allows families to share their experiences with those having similar concerns. CBTF also hosts and sponsors events, such as the Kids Cruise or Brain Tumor Week at Camp Sunshine, which offer families fun while building relationships within the community. The Children's Brain Tumor Foundation funds research to identify the causes of childhood brain tumors to find effective treatments.
Categories: Brain, Childhood, Other Cancers, Scholarships & Camps, Educational Programs , Peer/Buddy Programs

5526 West 13400 South
#510
Salt Lake City, UT 84096
Local Phone: 801-999-0455 (Responds to calls in English only)
info@cholangiocarcinoma.org
The Cholangiocarcinoma Foundation strives to unite patients, physicians, caregivers, and public and private institutions in the collaboration, understanding, research, and education of cholangiocarcinoma (bile duct cancer). Their mission is to find a cure and improve the quality of life for those affected by cholangiocarcinoma We fund research, offer an annual conference, and provide patient/caregiver education and advocacy. We offer publications in English, Spanish, Japanese and Chinese.
Categories: Other Cancers, Support Groups
Additional Resources:

16057 Tampa Palms Blvd W
PMB #373
Tampa, FL 33647
Free Line: 1-866-288-7475 (1-866-288-RISK) (Responds to calls in English and Spanish)
info@facingourrisk.org
FORCE: Facing our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of individuals and families affected by hereditary breast, ovarian, pancreatic, prostate, colorectal and endometrial (uterine) cancers. FORCE offers a toll-free, peer-support helpline staffed by volunteers who can discuss issues with callers, offer referrals to resources, or match callers with another peer counselor with similar experiences. FORCE also provides access to board-certified genetic counselors to answer general questions about genetics. Publications such as newsletters, brochures, and other print materials are available on the website.
Categories: Breast, Other Cancers, Ovarian, Health Professional Referrals, Peer/Buddy Programs

Suite 316
925B Peachtree Street, NE.
Atlanta, GA 30309
Local Phone: 678-767-2955 (Responds to calls in English only)
Free Line: 1-866-425-3678 (1-866-IAL-FORU) (Responds to calls in English only); 1-800-305-0117 (Speak to a Larynx Cancer Survivor in English only)
ialhq@theial.com
The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs, and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.
Categories: Head and Neck, Oral, Other Cancers, Educational Programs , Health Professional Referrals, Support Groups

Post Office Box 96503
Washington, DC 20090
Local Phone: 847-332-1051 (Responds to calls in English and Spanish)
Free Line: 1-800-850-9132 (Responds to calls in English and Spanish)
kidney.cancer@hotmail.com
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. The KCA offers a variety of services: educating patients and families and helping those with kidney cancer cope with the disease, advancing medical research and providing education for physicians and nurses, and serving as an advocate on behalf of patients. Contact the Nurse Hotline to find answers to questions about the treatment of kidney cancer and referrals to physicians in the United States. The KCA Web site provides free publications, calendars for support groups and patient conferences, online forums and chat rooms, and videos and podcasts. KCA responds to calls in English and Spanish.
Categories: Kidney, Other Cancers, Advocacy, Health Professional Referrals, Support Groups

3 International Drive, Suite 200
Rye Brook, NY 10573
Free Line: 1-800-955-4572 (Responds to calls in English and Spanish)
infocenter@lls.org
The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research and providing education and services to patients and caregivers. Support services include local support groups, online chat, an online patient community, and peer-to-peer support that links patients and their families with a trained volunteer who has experienced a similar situation.

Additional resources include educational programs, publications, home-care services, financial assistance, and information tailored to caregivers. Information specialists are available over-the-phone to assist with questions related to diagnosis and treatment, financial and social challenges, and support. Information is available in Spanish, with language interpretation available in 170 languages. LLS has chapter offices located throughout the United States and Canada.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Health Insurance (includes co-payments), Medication (includes co-payments), Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups

Post Office Box 19
Madison, CT 06443
Local Phone: 203-779-5034 (Responds to calls in English only)
info@lynchcancers.org
Lynch Syndrome International (LSI) provides support for individuals afflicted with Lynch syndrome (a hereditary disorder that places a person at higher risk of developing colorectal cancer, endometrial cancer, and various other types of aggressive cancers), increases public awareness of the syndrome, educates members of the general public and health care professionals, and provides support for Lynch syndrome research endeavors.

LSI is an all volunteer organization founded and governed by Lynch syndrome survivors, their families, and health care professionals who specialize in Lynch syndrome. The LSI Web site has comprehensive information on diagnosis, treatment, and follow-up issues for people with Lynch Syndrome.
Categories: Colorectal, Other Cancers, Advocacy, Peer/Buddy Programs

Suite 108
20411 West 12 Mile Road
Southfield, MI 48076
Local Phone: 248-358-1886 (Responds to calls in English only)
Free Line: 1-800-546-5268 (1-800-LINK-BMT) (Responds to calls in English only)
info@nbmtlink.org
The National Bone Marrow Transplant Link (nbmtLink) is a nonprofit organization specifically serving stem cell transplant patients, their caregivers, families, and health professionals. The nbmtLink provides information and support services, including a volunteer peer support program, resource referrals for patients and health professionals, and educational guides, videos, and Webcasts. The free nbmtLINK Online Library contains hundreds of journal articles, booklets, and reference materials, as well as comprehensive links to additional online information. Information on how to become a donor is also available.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Educational Programs , Peer/Buddy Programs , Support Groups

775 East Blithedale, #334
Mill Valley, CA 94941
Local Phone: 415-381-7236 (Responds to calls in English only)
info@sarcomaalliance.org
The Sarcoma Alliance strives to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education, and support. The Alliance offers financial assistance (grant maximum: $500) for expenses related to second opinion consultations. Support is available through their Peer-to-Peer Network which matches individuals affected by sarcoma with members who have had a similar experience. The Alliance also maintains a list of medical centers and hospitals specializing in sarcoma.
Categories: Other Cancers, Sarcoma, Lodging & Travel, Treatment, Health Professional Referrals, Peer/Buddy Programs

149 Madison Avenue
Suite 901
New York, NY 10016
Local Phone: 212-725-5176 (Responds to calls in English)
info@skincancer.org
The Skin Cancer Foundation (SCF) is dedicated to reducing the incidence of skin cancer through research, public education, and awareness. The Foundation’s website and publications provide information on all forms of skin cancer, detection, and prevention. SCF’s website also features a searchable database of skin cancer physicians. In addition, SCF offers physician education and training programs, supports research into new diagnostic techniques and therapies, and promotes public education programs abroad. Information is available in many languages.
Categories: Melanoma, Other Cancers, Skin Cancer (Nonmelanoma), Educational Programs , Health Professional Referrals

Post Office Box 1545
New York, NY 10159
Free Line: 1-877-588-7904 (Responds to calls in English and Spanish)
thyca@thyca.org
The Thyroid Cancer Survivors' Association, Inc. (ThyCa) is a national nonprofit organization of thyroid cancer survivors, families, and health care professionals dedicated to educate, communicate, and support early detection for thyroid cancer. ThyCa offers a toll-free survivors’ line, publications, e-mail support groups, local support groups, a person-to-person network, newsletters, and conferences. ThyCa also offers a free packet of educational materials for newly diagnosed patients. In addition, ThyCa is active in raising funds and providing grants for thyroid cancer research. The organization has volunteers who are fluent in Spanish, and sections of the Web site are available in Spanish.
Categories: Other Cancers, Thyroid, Health Professional Referrals, Peer/Buddy Programs , Support Groups

1000 Corporate Boulevard
Linthicum, MD 21090
Local Phone: 410-689-3700 (Responds to calls in English only)
Free Line: 1-800-828-7866 (Urology Health Line) (Responds to calls in English only)
info@UrologyCareFoundation.org
The Urology Care Foundation supports research and education for urologic diseases and disorders. The Foundation provides information on cancers of the bladder, ureter, renal pelvis, prostate, kidney, penis, testicles, and urethra. Their website also offers an online directory of urologists. Some resources are available in Spanish.
Categories: Bladder, Kidney, Other Cancers, Other Male Reproductive, Prostate, Urinary System, Health Professional Referrals
Inclusion in this list does not imply endorsement by the National Cancer Institute. Please submit this form if you would like us to consider adding your organization. The form also describes our inclusion criteria.