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The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs, and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.

The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. The KCA offers a variety of services: educating patients and families and helping those with kidney cancer cope with the disease, advancing medical research and providing education for physicians and nurses, and serving as an advocate on behalf of patients. Contact the Nurse Hotline to find answers to questions about the treatment of kidney cancer and referrals to physicians in the United States. The KCA Web site provides free publications, calendars for support groups and patient conferences, online forums and chat rooms, and videos and podcasts. KCA responds to calls in English and Spanish.

The Mesothelioma Applied Research Foundation (Meso Foundation) is a nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating mesothelioma. The Meso Foundation aims to provide up-to-date information on the disease and its treatment, as well as to connect patients and families with specialists, support resources and community. Mesothelioma experts are available over-the-phone and via email. Patients traveling for an initial consultation and those enrolled in a clinical trial may be eligible for reimbursement of travel-related expenditures.

The Multiple Myeloma Research Foundation (MMRF) provides information for patients with multiple myeloma and other types of plasma cell disorders. In addition to resources specific to the disease, including information on signs and symptoms, initial diagnosis, and treatment options, a variety of publications and educational programs are available for patients and their caregivers. The MMRF also provides information on finding a treatment center, support groups, and financial assistance programs. Nurse Patient Navigators offer information and support over-the-phone, via email and through social media. Select publications are available in Spanish.

The National Lymphedema Network (NLN) provides education and guidance to lymphedema patients, health care professionals, and the general public by providing information on the prevention and management of primary and secondary lymphedema. The NLN provides referrals to lymphedema treatment centers, health care professionals, training programs, and support groups. Lymphedema garments are also available for patients who meet eligibility criteria. Limited information is available in Spanish.

Information is available on the website or via the toll-free number. If you call the toll-free number, you may need to leave a voicemail message.

The Thyroid Cancer Survivors' Association, Inc. (ThyCa) is a national nonprofit organization of thyroid cancer survivors, families, and health care professionals dedicated to educate, communicate, and support early detection for thyroid cancer. ThyCa offers a toll-free survivors’ line, publications, e-mail support groups, local support groups, a person-to-person network, newsletters, and conferences. ThyCa also offers a free packet of educational materials for newly diagnosed patients. In addition, ThyCa is active in raising funds and providing grants for thyroid cancer research. The organization has volunteers who are fluent in Spanish, and sections of the Web site are available in Spanish.