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The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs, and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.

The Oral Cancer Foundation (OCF) is a nonprofit organization that provides information, patient support, research, and advocacy on oral cancer. Online materials include detailed information on risk factors, diagnosis, and treatment of oral cancers, as well as access to a free Patient/Survivor Forum. A comprehensive list of resources is available to help patients find additional information, including: support organizations, financial assistance, governmental agencies, private cancer foundations, and cancer treatment and research centers.

Support for People with Oral and Head and Neck Cancer (SPOHNC) is a nonprofit organization dedicated to addressing the emotional and physical needs of people with oral and head and neck cancer. The organization offers support groups facilitated by local chapters; current information on oral and head and neck cancer through its newsletter, "News From SPOHNC,"; free publications on topics such as treatment for head and neck cancer and dental care, recipes and resource guide to cope with eating challenges, and a survivor’s guide. SPOHNC also offers a National Survivor Volunteer Network, which pairs survivors or family members with volunteers who have had a similar diagnosis and treatment program.