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American Childhood Cancer Organization
Post Office Box 498
Kensington, MD 20895
Local Phone: 301-962-3520 (Responds to calls in English only)
Free Line: 1-855-858-2226 (Responds to calls in English only)
staff@acco.org
The American Childhood Cancer Organization (ACCO) provides information about childhood cancer, treatment protocols, medication, and research to families with children or adolescents with cancer. Through hospital and community-based programs, local affiliates provide direct support to patients and their families. Support resources include face-to-face and online support groups, childhood cancer camps, as well as free publications and kits. Affiliates may also provide emergency financial assistance for rent or mortgage payments, car repairs, transportation, pre-paid gas cards, and groceries. More information on financial assistance is available on ACCO’s website.
Categories: Childhood, General Living Expenses, Lodging & Travel, Scholarships & Camps, Advocacy, Support Groups
Children's Brain Tumor Foundation
Suite 1004
274 Madison Avenue
New York, NY 10016
Local Phone: 212-448-9494 (Responds to calls in English and Spanish)
Free Line: 1-866-228-4673 (1-866-228-HOPE) (Responds to calls in English and Spanish)
info@cbtf.org
The Children's Brain Tumor Foundation (CBTF) is a nonprofit organization whose mission is to improve the treatment, quality of life, and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy for families and survivors. CBTF has a free publication, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, and also co-sponsors conferences, teleconferences, and webinars for families, survivors, and health care professionals. CBTF offers a toll-free support line where you may speak with pediatric neuro-oncology social workers. CBTF's Family 2 Family Network allows families to share their experiences with those having similar concerns. CBTF also hosts and sponsors events, such as the Kids Cruise or Brain Tumor Week at Camp Sunshine, which offer families fun while building relationships within the community. The Children's Brain Tumor Foundation funds research to identify the causes of childhood brain tumors to find effective treatments.
Categories: Brain, Childhood, Other Cancers, Scholarships & Camps, Educational Programs , Peer/Buddy Programs
CureSearch for Children's Cancer
4600 East West Highway
Suite 600
Bethesda, MD 20814-3457
Free Line: Toll Free: 1-800-458-6223
info@curesearch.org
CureSearch for Children's Cancer is a national non-profit foundation that funds and supports innovative childhood cancer research at all points along the research continuum from fellowships for young investigators to funding research which may lead to new treatments. The website also provides information and resources for patients and loved ones affected by children's cancer. Topics include school support, community support, grieving and palliative care.
Categories: Childhood, Support Groups
The National Children's Cancer Society
500 North Broadway
Suite 1850
St. Louis, MO 63102
Local Phone: 314-241-1600 (General) (Responds to calls in English only)
Free Line: 1-800-532-6459 (1-800-5-FAMILY) (Responds to calls in English only)
pbeck@children-cancer.org
The National Children’s Cancer Society (NCCS) provides emotional, financial and educational support to children with cancer, their families and survivors. Types of financial assistance available include emergency assistance for living expenses, travel costs related to cancer treatment, and college scholarships for childhood cancer survivors. NCCS also provides information and support during and after treatment, including information on the late effects of childhood cancer and a list of long-term follow up clinics. Please visit the website for more details about the services offered by NCCS.
Categories: Childhood, General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Scholarships & Camps, Support Groups
National Lymphedema Network
2288 Fulton St.
Suite 307
Berkeley, CA 94704
Local Phone: 510-809-1660 (Responds to calls in English only)
Free Line: 1-800-541-3259 (Responds to calls in English only)
nln@lymphnet.org
The National Lymphedema Network (NLN) provides education and guidance to lymphedema patients, health care professionals, and the general public by providing information on the prevention and management of primary and secondary lymphedema. The NLN provides referrals to lymphedema treatment centers, health care professionals, training programs, and support groups. Lymphedema garments are also available for patients who meet eligibility criteria. Limited information is available in Spanish. Information is available on the website or via the toll-free number. If you call the toll-free number, you may need to leave a voicemail message.
Categories: Childhood, Medical Supplies, Wigs, Prostheses , Treatment, Health Professional Referrals, Peer/Buddy Programs , Support Groups
Ulman Foundation
1215 East Fort Avenue
Suite 104
Baltimore, MD 21230
Local Phone: 410-964-0202 (Responds to calls in English only)
Free Line: 1-888-393-3863 (1-888-393-FUND) (Responds to calls in English only)
info@ulmanfoundation.org
Ulman Foundation creates a community of support for young adults, and their loved ones, impacted by cancer. Ulman Navigators (available by phone & email, or onsite in Maryland & D.C.) provide a person-centered approach to patient care. They help to facilitate communication, fertility preservation, emotional and practical support. Ulman sponsors meet-ups and support groups in the Maryland/DC area, offers a national scholarship program for survivors and loved ones between the ages of 15 - 39, and a free run/walk exercise program for cancer survivors.
Categories: Childhood, Scholarships & Camps, Peer/Buddy Programs , Support Groups