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American Lung Association
55 W. Wacker Drive
Suite 1150
Chicago, IL 60601
Free Line: 1-800-LUNGUSA (1-800-586-4872) (Responds to calls in English and Spanish)
info@lung.org
The mission of the American Lung Association® (ALA) is to save lives by improving lung health and preventing lung disease through education, advocacy, and research. Their online Resource Library provides lung cancer patients, and their loved ones, with information on diagnosis and treatment, educational videos, and research. Additional resources include their Lung Helpline and online support communities. Assistance with smoking cessation is available through their Freedom from Smoking programs. Phone and online resources are available in English and Spanish.
Categorías: Lung, Advocacy, Counseling, Educational Programs , Support Groups
Cancer and Careers
159 West 25th St
8th Floor
New York, NY 10001
Local Phone: 646-929-8032 (Responds to calls in English only)
cancerandcareers@cew.org
Cancer and Careers empowers and educates people with cancer to thrive in the workplace. A variety of programs provide cancer patients and survivors with information needed to navigate the practical and legal challenges that follow a diagnosis. Online resources, available in English and Spanish, include career coaching, information on conducting a job search, resume review services, interviewing tips, free publications, support groups, and educational seminars. There are also resources specific to healthcare providers, employers, and coworkers. Callers may be asked to send an email with questions, or to leave a message.
Categorías: Educational Programs , Legal Issues, Support Groups
Cancer Support Community
734 15th Street, NW
Suite 300
Washington, DC 20005
Local Phone: 202-659-9709 (Responds to calls in English only)
Free Line: 1-888-793-9355 (Responds to calls in multiple languages)
help@cancersupportcommunity.org
The Cancer Support Community (CSC) is dedicated to providing emotional support for individuals affected by cancer, including their families and friends. With its online community and global network of 175 locations, the CSC offers a variety of free services, including: support groups, counseling, cancer education, navigating costs, publications, webinars, personal patient websites (MyLifeLine), and healthy lifestyle programs. The CSC also conducts research and advocates for those whose lives have been disrupted by cancer. Select online resources are available in Spanish, Chinese, and other languages. The Cancer Support Helpline’s licensed counselors provide guidance, resources and support to cancer patients or their loved ones. Counseling is available in over 200 languages. For longer-term support, referrals to local mental health professionals are available.
Categorías: Advocacy, Counseling, Educational Programs , Lodging & Travel, Support Groups
CancerCare
275 Seventh Avenue
22nd Floor
New York, NY 10001
Local Phone: 212-712-8400 (Administrative)
Free Line: 1-800-813-4673 (1-800-813-HOPE) (Responds to calls in English and Spanish)
info@cancercare.org
CancerCare provides free, professional support services and information to help anyone affected by cancer. Services include individual and group counseling, support groups, educational workshops, publications, practical help and referrals. Limited financial assistance may be available for select cancer-related expenses. Information on current programs is available online or by calling CancerCare directly. Short-term counseling is provided by oncology social workers and is available in-person (at their local offices), online or over the telephone. Many resources, including counseling, are available in Spanish.
Categorías: Medication (includes co-payments), Counseling, Educational Programs , Support Groups
Children's Brain Tumor Foundation
Suite 1004
274 Madison Avenue
New York, NY 10016
Local Phone: 212-448-9494 (Responds to calls in English and Spanish)
Free Line: 1-866-228-4673 (1-866-228-HOPE) (Responds to calls in English and Spanish)
info@cbtf.org
The Children's Brain Tumor Foundation (CBTF) is a nonprofit organization whose mission is to improve the treatment, quality of life, and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy for families and survivors. CBTF has a free publication, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, and also co-sponsors conferences, teleconferences, and webinars for families, survivors, and health care professionals. CBTF offers a toll-free support line where you may speak with pediatric neuro-oncology social workers. CBTF's Family 2 Family Network allows families to share their experiences with those having similar concerns. CBTF also hosts and sponsors events, such as the Kids Cruise or Brain Tumor Week at Camp Sunshine, which offer families fun while building relationships within the community. The Children's Brain Tumor Foundation funds research to identify the causes of childhood brain tumors to find effective treatments.
Categorías: Brain, Childhood, Other Cancers, Scholarships & Camps, Educational Programs , Peer/Buddy Programs
Dear Jack Foundation
1840B W. Littleton Blvd
Littleton , CO 80120
info@dearjackfoundation.org
The Dear Jack Foundation provides impactful programs benefiting adolescents and young adults (AYA) diagnosed with cancer and their families to improve their quality of life from treatment to survivorship. Their vision is to be a national leader in AYA cancer programming, by giving patients, survivors, and their caregivers a community and support rooted in mental and physical wellness-based tools and resources from diagnosis through survivorship. They offer various programs including, LifeList, a wish granting program for individuals in active treatment, and Breathe Now, a retreat offered to survivors and their partners. They also offer a community and mental health initiative digital space created to provide AYA cancer patients, survivors, and thrivers with access to virtual get-togethers, resources, and mental health support. Support services and resources are available in English and Spanish.
Categorías: General Living Expenses, Lodging & Travel, Counseling, Educational Programs , Health Professional Referrals, Peer/Buddy Programs , Support Groups
GO2 Foundation for Lung Cancer
1700 K Street NW
Suite 660
Washington, DC 20006
Local Phone: 202-463-2080
Free Line: 1-800-298-2436 (Lung Cancer Helpline)
support@go2foundation.org
GO2 Foundation for Lung Cancer (formerly the Lung Cancer Alliance) is dedicated to improving the lives of those living with or at risk of lung cancer. Through the Lung Cancer Helpline, callers can access free one-on-one support, educational materials, guidance on screening, treatment and clinical trials, referrals and a variety of other resources. Programs include peer-to-peer support, support groups and online patient communities, clinical trial matching, webinars, and monthly presentations. Most resources, including their Helpline, are available in English only.
Categorías: Lung, Screening, Treatment, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
HIS Breast Cancer Awareness
1 S. Iroquois Avenue
Margate City, NJ 08402
hisbreastcancer@gmail.com
HIS Breast Cancer Awareness educates and supports those at risk of or diagnosed with male breast cancer. They provide information packets, how to perform a self-breast exam (as a man), hereditary cancer risk factors and support groups. Their website is designed to help educate, provide resources and support with our expert medical advisors, genetic counselors and programs. Support services and resources are available in English and Spanish.
Categorías: Breast, International, Screening, Treatment, Advocacy, Counseling, Educational Programs , Health Professional Referrals, Peer/Buddy Programs , Support Groups
International Association of Laryngectomees
Suite 316
925B Peachtree Street, NE.
Atlanta, GA 30309
Local Phone: 678-767-2955 (Responds to calls in English only)
Free Line: 1-866-425-3678 (1-866-IAL-FORU) (Responds to calls in English only); 1-800-305-0117 (Speak to a Larynx Cancer Survivor in English only)
ialhq@theial.com
The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs, and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.
Categorías: Head and Neck, Oral, Other Cancers, Educational Programs , Health Professional Referrals, Support Groups
International Myeloma Foundation
Suite 206
12650 Riverside Drive
North Hollywood, CA 91607
Local Phone: 818-487-7455 (Responds to calls in English and Spanish)
Free Line: 1-800-452-2873 (1-800-452-CURE) (Responds to calls in English and Spanish)
TheIMF@myeloma.org
The International Myeloma Foundation (IMF) is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF Hotline answers questions from patients and family members and provides information about medical services, pharmaceutical access, and patient support groups. Free IMF publications include the IMF Multiple Myeloma Patient Handbook; Multiple Myeloma: A Concise Review of the Disease and Treatment Options; and the Understanding Series – treatment specific brochures on new therapies and clinical trials. The Foundation conducts Patients & Family Seminars to educate patients on the latest information about current therapies, research advances, and emerging treatment options. A comprehensive network of support groups from around the world are also available to assist patients and their families. The IMF operates Bank-On-A-Cure®, a unique global gene bank to advance myeloma research. The IMF's research grant program funds research projects around the world for both multiple myeloma and amyloidosis.
Categorías: Multiple Myeloma, Educational Programs , Support Groups
International Waldenstrom's Macroglobulinemia Foundation
6144 Clark Center Ave.
Sarasota, FL 34238
Local Phone: 941-927-4963 (Responds to calls in English only) Fax: 941-927-4467
info@iwmf.com
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) provides encouragement and support to people with Waldenstrom macroglobulinemia (WM) and offers information and education programs that address patient's concerns, and promotes and supports research leading to a cure. The IWMF offers many patient publications, including a New Patient Information Package (Info Pak). IWMF-Talk is an e-mail talklist for discussion of every aspect of WM (available in English, French, German, Spanish, Nordic Countries, U.K.). Telephone Lifeline Support provides telephone numbers of IWMF volunteers who will answer questions about their first-hand experience with specific treatment for WM. IWMF also provides telephone and e-mail network lists that connect patients and caregivers. IWMF provides funding to researchers studying a treatment or cure for Waldenstrom macrogloblinemia or related blood cancer. Information on the Web site is available in French, Spanish, and German.
Categorías: Non-Hodgkin Lymphoma, Educational Programs , Support Groups
Leukemia and Lymphoma Society
3 International Drive, Suite 200
Rye Brook, NY 10573
Free Line: 1-800-955-4572 (Responds to calls in English and Spanish)
infocenter@lls.org
The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research and providing education and services to patients and caregivers. Support services include local support groups, online chat, an online patient community, and peer-to-peer support that links patients and their families with a trained volunteer who has experienced a similar situation. Additional resources include educational programs, publications, home-care services, financial assistance, and information tailored to caregivers. Information specialists are available over-the-phone to assist with questions related to diagnosis and treatment, financial and social challenges, and support. Information is available in Spanish, with language interpretation available in 170 languages. LLS has chapter offices located throughout the United States and Canada.
Categorías: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Health Insurance (includes co-payments), Medication (includes co-payments), Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
Living Beyond Breast Cancer
40 Monument Road, Suite 104
Bala Cynwyd, PA 19004
Local Phone: 484-708-1550 (Responds to calls in English only); 610-645-4567 (Responds to calls in English only)
Free Line: 1-888-753-5222 (1-888-753-LBBC) (Breast Cancer Helpline) (Responds to calls in English)
mail@lbbc.org
Living Beyond Breast Cancer (LBBC) aims to connect people with trusted breast cancer information and support. Tailored content is available for individuals at high risk for developing breast cancer, as well as for those newly diagnosed, in treatment, or years beyond treatment. Online resources include interactive message boards, webinars, guides and brochures, and transcripts/audio recordings of conferences. Additionally, resources are also available for select demographics, including younger women, Latina women, the LGBT community, and men with breast cancer. The Breast Cancer Helpline is a national, toll-free telephone service staffed by trained volunteers affected by breast cancer, and offers guidance, information, and support. Online resources are available in English and Spanish.
Categorías: Breast, Educational Programs , Peer/Buddy Programs
Lobular Breast Cancer Alliance Inc.
P.O. Box 200
White Horse Beach, MA 02381
info@lobularbreastcancer.org
The Lobular Breast Cancer Alliance’s (LBCA) mission is to make all who are touched by invasive lobular carcinoma (ILC) aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials and educational tools; to foster partnerships among patients, scientists, clinicians, and breast cancer organizations to increase dialogue about ILC and research advocacy; and to fund vital ILC research. LBCA provides comprehensive, scientifically vetted and downloadable patient information in 16+ languages on our website, links to clinical trials accepting patients with lobular breast cancer and links to other patient supports and resources. Our primary audience is individuals who have or have had lobular breast cancer and their family and friends. We have an international scientific advisory board and an international following and individuals who receive our monthly newsletter. Resources are available in English and Spanish.
Categorías: International, Screening, Treatment, Advocacy, Counseling, Educational Programs , Health Professional Referrals, Peer/Buddy Programs , Support Groups
Lymphoma Research Foundation
115 Broadway
Suite 1301
New York, NY 10006
Local Phone: 212-349-2910
Free Line: 1-800-500-9976
helpline@lymphoma.org
The Lymphoma Research Foundation (LRF) is a voluntary health organization devoted to funding lymphoma research and providing patients and health care professionals with information on the disease. LRF’s support programs include the Lymphoma Support Network, a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences. Trained staff members are available to answer questions, offer individual support, and search for clinical trials on the Lymphoma Helpline and Clinical Trials Information Service. LRF’s Patient Aid Grant program provides limited assistance to lymphoma patients currently undergoing treatment for help with medical bills, transportation, temporary lodging, and childcare.
The research goals of LRF are focused on engaging and educating junior researchers and bringing together investigators focusing on specific diseases or other focal points. The Foundation has launched several special research programs, including an initiative to study mantle cell lymphoma, a type of non-Hodgkin lymphoma that is especially challenging to treat. The Foundation advocates on behalf of the lymphoma community to increase federal funding for lymphoma research and education, and to ensure access to high-quality cancer care for every patient.
Categorías: Hodgkin Lymphoma, Non-Hodgkin Lymphoma, General Living Expenses, Lodging & Travel, Medical Supplies, Wigs, Prostheses , Advocacy, Educational Programs , Peer/Buddy Programs
Mesothelioma Applied Research Foundation
1615 L Street
Suite 430
Washington, DC 20036
Free Line: 1-877-363-6376 (1-877-END-MESO) (Responds to calls in English only)
info@curemeso.org
The Mesothelioma Applied Research Foundation (Meso Foundation) is a nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating mesothelioma. The Meso Foundation aims to provide up-to-date information on the disease and its treatment, as well as to connect patients and families with specialists, support resources and community. Mesothelioma experts are available over-the-phone and via email. Patients traveling for an initial consultation and those enrolled in a clinical trial may be eligible for reimbursement of travel-related expenditures.
Categorías: Mesothelioma, Lodging & Travel, Advocacy, Educational Programs , Health Professional Referrals, Peer/Buddy Programs , Support Groups
Multiple Myeloma Research Foundation
5th Floor
383 Main Avenue
Norwalk, CT 06851
Local Phone: 203-229-0464 (Responds to calls in English only)
Free Line: 1-866-603-6628 (available M-F, 9am-7pm ET)
info@themmrf.org
The Multiple Myeloma Research Foundation (MMRF) provides information for patients with multiple myeloma and other types of plasma cell disorders. In addition to resources specific to the disease, including information on signs and symptoms, initial diagnosis, and treatment options, a variety of publications and educational programs are available for patients and their caregivers. The MMRF also provides information on finding a treatment center, support groups, and financial assistance programs. Nurse Patient Navigators offer information and support over-the-phone, via email and through social media. Select publications are available in Spanish.
Categorías: Multiple Myeloma, Health Insurance (includes co-payments), Lodging & Travel, Medication (includes co-payments), Treatment, Educational Programs , Health Professional Referrals, Support Groups
National Bone Marrow Transplant Link
Suite 108
20411 West 12 Mile Road
Southfield, MI 48076
Local Phone: 248-358-1886 (Responds to calls in English only)
Free Line: 1-800-546-5268 (1-800-LINK-BMT) (Responds to calls in English only)
info@nbmtlink.org
The National Bone Marrow Transplant Link (nbmtLink) is a nonprofit organization specifically serving stem cell transplant patients, their caregivers, families, and health professionals. The nbmtLink provides information and support services, including a volunteer peer support program, resource referrals for patients and health professionals, and educational guides, videos, and Webcasts. The free nbmtLINK Online Library contains hundreds of journal articles, booklets, and reference materials, as well as comprehensive links to additional online information. Information on how to become a donor is also available.
Categorías: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Educational Programs , Peer/Buddy Programs , Support Groups
National Cervical Cancer Coalition
PO Box 13827
Research Triangle Park, NC 27709
Local Phone: 818-992-4242 (Responds to calls in English only)
Free Line: 1-800-685-5531 (Responds to calls in English only)
nccc@ashasexualhealth.org
The National Cervical Cancer Coalition (NCCC) is a nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. Its mission is to promote prevention through education about early vaccination, Pap testing and HPV testing, when recommended. Services include access to online educational materials (publications, videos and webinars), a variety of patient and family support resources, and information on free/low-cost Pap testing. Some resources are available in Spanish.
Categorías: Cervical, Screening, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
National Ovarian Cancer Coalition
Suite 435
2501 Oak Lawn Avenue
Dallas, TX 75219
Local Phone: 214-273-4200 (Responds to calls in English only)
Free Line: 1-888-682-7426 (1-888-OVARIAN) (Responds to calls in English only)
nocc@ovarian.org
The National Ovarian Cancer Coalition (NOCC) is committed to raising awareness of ovarian cancer in communities across the country and providing education and support for women with ovarian cancer and their families. NOCC has a toll-free number for information, referral, support, and education about ovarian cancer. NOCC also offers support groups, a national newsletter, and educational materials on issues such as symptoms, risk factors, and treatment. Committed volunteers continue to build a network of NOCC Chapters throughout the country to advance the ovarian cancer awareness movement in local communities.
Categorías: Ovarian, Advocacy, Educational Programs , Peer/Buddy Programs
The Oral Cancer Foundation
Number 205
3419 Via Lido
Newport Beach, CA 92663
Local Phone: 949-723-4400
info@oralcancerfoundation.org
The Oral Cancer Foundation (OCF) is a nonprofit organization that provides information, patient support, research, and advocacy on oral cancer. Online materials include detailed information on risk factors, diagnosis, and treatment of oral cancers, as well as access to a free Patient/Survivor Forum. A comprehensive list of resources is available to help patients find additional information, including: support organizations, financial assistance, governmental agencies, private cancer foundations, and cancer treatment and research centers.
Categorías: Oral, Advocacy, Educational Programs , Peer/Buddy Programs
Pancreatic Cancer Action Network
1500 Rosecrans Avenue
Suite 200
Manhattan Beach, CA 90266
Local Phone: 310-725-0025 (Responds to calls in English and Spanish)
Free Line: 1-877-272-6226 (1-877-2-PANCAN) (Responds to calls in English and Spanish)
info@pancan.org
The Pancreatic Cancer Action Network (PanCAN) is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer. PanCAN provides patients, loved ones and healthcare professionals with free, in-depth and personalized resources and information on pancreatic cancer, including support services, such as: Survivor & Caregiver Network, matching patients and loved ones with others who have been in their shoes Clinical trials searches Know Your Tumor® precision medicine service Educational webinars Lists of pancreatic cancer specialists Local activities and opportunities to connect with others in the community Information is available in English and Spanish. PanCAN’s Patient Registry also gives patients and caregivers the opportunity to help advance research by sharing their experiences in an online database.
Categorías: Pancreas, Advocacy, Educational Programs , Health Professional Referrals, Peer/Buddy Programs
Sharsheret
1086 Teaneck Road, Suite 3A
Teaneck, NJ 07666
Local Phone: 201-833-2341
Free Line: 1-866-474-2774
info@sharsheret.org
Sharsheret, Hebrew for “chain”, is a national organization which supports young Jewish woman and families facing breast and ovarian cancer. They offer a peer support network that connects women newly diagnosed or at high risk of developing breast or ovarian cancer with others who share similar diagnoses and experiences. They also provide support and education programs addressing advanced breast cancer, genetics, parenting, cosmetic side effects of treatment as well as programs for caregivers and those facing ovarian cancer. Genetic counselors are available to discuss family history, concerns about cancer risk and the implications of genetic counseling. Sharsheret’s programs are open to all women and men.
Categorías: Breast, Educational Programs , Peer/Buddy Programs , Support Groups
Young Survival Coalition
80 Broad Street
Suite 1700
New York, NY 10004
Local Phone: 646-257-3000 (Responds to calls in English only)
Free Line: 1-877-972-1011 (1-877-YSC-1011) (Responds to calls in English only)
info@youngsurvival.org
The Young Survival Coalition (YSC) focuses on issues unique to young women who are diagnosed with breast cancer. YSC works with survivors, caregivers, and the medical, research, advocacy, and legislative communities to improve the quality of life for breast cancer patients age 40 and younger. YSC can help young survivors find a support group, or match survivors with volunteers who’ve had a similar experience. YSC offers online resources including educational and support materials, discussion boards, and information about conferences and symposia. Some publications are available in Spanish, and Spanish-speaking volunteers are available to serve as survivor matches in its peer-support program.
Categorías: Breast, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups