Skip to Content
National Cancer Institue
 
 Help

Home \ Results (105) \ Advocacy (20)

Refine by:

There are 20 organizations that may meet your needs.

Post Office Box 498
Kensington, MD 20895
Local Phone: 301-962-3520 (Responds to calls in English only)
Free Line: 1-855-858-2226 (Responds to calls in English only)
staff@acco.org
The American Childhood Cancer Organization (ACCO) provides information about childhood cancer, treatment protocols, medication, and research to families with children or adolescents with cancer. Through hospital and community-based programs, local affiliates provide direct support to patients and their families. Support resources include face-to-face and online support groups, childhood cancer camps, as well as free publications and kits. Affiliates may also provide emergency financial assistance for rent or mortgage payments, car repairs, transportation, pre-paid gas cards, and groceries. More information on financial assistance is available on ACCO’s website.
Categories: Childhood, General Living Expenses, Lodging & Travel, Scholarships & Camps, Advocacy, Support Groups
Additional Resources:

4520 East West Hwy
Suite 610
Bethesda, MD 20814
Local Phone: 301-215-9099 (Responds to calls in English only)
Free Line: 1-888-901-2226 (1-888-901-BCAN) (Responds to calls in English only)
The Bladder Cancer Advocacy Network (BCAN) is a nonprofit organization dedicated to increasing public awareness, advancing research, and providing educational and support services to the bladder cancer community. Online resources include educational materials, webinars, and access to online and in-person support services for patients and loved ones. BCAN also conducts patient forums at various sites across the country.
Categories: Bladder, Other Cancers, Advocacy, Support Groups

Suite 1066
1025 Vermont Avenue NW, Suite 1066
Washington, DC 20005
Local Phone: 202-628-0123
Free Line: 1-877-422-2030 (Helpline) (Responds to calls in English and Spanish)
info@ccalliance.org
The Colorectal Cancer Alliance is a national nonprofit organization that provides support to patients and families, caregivers, and survivors. It works to raise awareness of preventive measures, and to inspire efforts to fund research. Online resources provide information on screening, prevention, diagnosis, treatment, and survivorship, as well as a variety of support services and information on financial assistance programs (including screening and treatment-related expenses). The Buddy Program matches survivors and caregivers with others in a similar situation for one-on-one support. Over-the-phone and online resources are available in English and Spanish.
Categories: Colorectal, Screening, Advocacy, Peer/Buddy Programs
Additional Resources:

Free Line: 1-877-427-2111 (1-877-4CRC-111) (Responds to call in English only)
Fight Colorectal Cancer (Fight CRC) is the leading patient-empowerment and advocacy organization in the United States, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. Educational resources provide information on colorectal cancer prevention, diagnosis, treatment, and survivorship. The Fight CRC Patient Resource Line, in partnership with the Cancer Support Community, connects callers to a variety of local and/or national resources, as well as provides short-term counseling, treatment decision planning, and financial counseling related to the costs of cancer and its treatments. Over-the-phone assistance, as provided by the Cancer Support Community, is available in over 200 languages.
Categories: Colorectal, Advocacy, Educational Programs

1700 K Street NW
Suite 660
Washington, DC 20006
Local Phone: 202-463-2080
Free Line: 1-800-298-2436 (Lung Cancer Helpline)
support@go2foundation.org
GO2 Foundation for Lung Cancer (formerly the Lung Cancer Alliance) is dedicated to improving the lives of those living with or at risk of lung cancer. Through the Lung Cancer Helpline, callers can access free one-on-one support, educational materials, guidance on screening, treatment and clinical trials, referrals and a variety of other resources. Programs include peer-to-peer support, support groups and online patient communities, clinical trial matching, webinars, and monthly presentations. Most resources, including their Helpline, are available in English only.
Categories: Lung, Screening, Treatment, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups

Post Office Box 96503
Washington, DC 20090
Local Phone: 847-332-1051 (Responds to calls in English and Spanish)
Free Line: 1-800-850-9132 (Responds to calls in English and Spanish)
kidney.cancer@hotmail.com
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. The KCA offers a variety of services: educating patients and families and helping those with kidney cancer cope with the disease, advancing medical research and providing education for physicians and nurses, and serving as an advocate on behalf of patients. Contact the Nurse Hotline to find answers to questions about the treatment of kidney cancer and referrals to physicians in the United States. The KCA Web site provides free publications, calendars for support groups and patient conferences, online forums and chat rooms, and videos and podcasts. KCA responds to calls in English and Spanish.
Categories: Kidney, Other Cancers, Advocacy, Health Professional Referrals, Support Groups

3 International Drive, Suite 200
Rye Brook, NY 10573
Free Line: 1-800-955-4572 (Responds to calls in English and Spanish)
infocenter@lls.org
The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research and providing education and services to patients and caregivers. Support services include local support groups, online chat, an online patient community, and peer-to-peer support that links patients and their families with a trained volunteer who has experienced a similar situation.

Additional resources include educational programs, publications, home-care services, financial assistance, and information tailored to caregivers. Information specialists are available over-the-phone to assist with questions related to diagnosis and treatment, financial and social challenges, and support. Information is available in Spanish, with language interpretation available in 170 languages. LLS has chapter offices located throughout the United States and Canada.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Health Insurance (includes co-payments), Medication (includes co-payments), Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups

40 Monument Road, Suite 104
Bala Cynwyd, PA 19004
Local Phone: 484-708-1550 (Responds to calls in English only); 610-645-4567 (Responds to calls in English only)
Free Line: 1-888-753-5222 (1-888-753-LBBC) (Breast Cancer Helpline) (Responds to calls in English)
mail@lbbc.org
Living Beyond Breast Cancer (LBBC) aims to connect people with trusted breast cancer information and support. Tailored content is available for individuals at high risk for developing breast cancer, as well as for those newly diagnosed, in treatment, or years beyond treatment. Online resources include interactive message boards, webinars, guides and brochures, and transcripts/audio recordings of conferences. Additionally, resources are also available for select demographics, including younger women, Latina women, the LGBT community, and men with breast cancer. The Breast Cancer Helpline is a national, toll-free telephone service staffed by trained volunteers affected by breast cancer, and offers guidance, information, and support. Online resources are available in English and Spanish.
Categories: Breast, Educational Programs , Peer/Buddy Programs

115 Broadway
Suite 1301
New York, NY 10006
Local Phone: 212-349-2910
Free Line: 1-800-500-9976
helpline@lymphoma.org
The Lymphoma Research Foundation (LRF) is a voluntary health organization devoted to funding lymphoma research and providing patients and health care professionals with information on the disease. LRF’s support programs include the Lymphoma Support Network, a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences. Trained staff members are available to answer questions, offer individual support, and search for clinical trials on the Lymphoma Helpline and Clinical Trials Information Service. LRF’s Patient Aid Grant program provides limited assistance to lymphoma patients currently undergoing treatment for help with medical bills, transportation, temporary lodging, and childcare.

The research goals of LRF are focused on engaging and educating junior researchers and bringing together investigators focusing on specific diseases or other focal points. The Foundation has launched several special research programs, including an initiative to study mantle cell lymphoma, a type of non-Hodgkin lymphoma that is especially challenging to treat. The Foundation advocates on behalf of the lymphoma community to increase federal funding for lymphoma research and education, and to ensure access to high-quality cancer care for every patient.


Categories: Hodgkin Lymphoma, Non-Hodgkin Lymphoma, General Living Expenses, Lodging & Travel, Medical Supplies, Wigs, Prostheses , Advocacy, Educational Programs , Peer/Buddy Programs

Post Office Box 19
Madison, CT 06443
Local Phone: 203-779-5034 (Responds to calls in English only)
info@lynchcancers.org
Lynch Syndrome International (LSI) provides support for individuals afflicted with Lynch syndrome (a hereditary disorder that places a person at higher risk of developing colorectal cancer, endometrial cancer, and various other types of aggressive cancers), increases public awareness of the syndrome, educates members of the general public and health care professionals, and provides support for Lynch syndrome research endeavors.

LSI is an all volunteer organization founded and governed by Lynch syndrome survivors, their families, and health care professionals who specialize in Lynch syndrome. The LSI Web site has comprehensive information on diagnosis, treatment, and follow-up issues for people with Lynch Syndrome.
Categories: Colorectal, Other Cancers, Advocacy, Peer/Buddy Programs

55 Chapel Street, Suite 200
Newton, MA 02458
Local Phone: 617-924-9997
info@braintumor.org
The National Brain Tumor Society (NBTS) is the largest nonprofit organization dedicated to the brain tumor community in the United States. They are committed to improving the lives of all those affected by brain tumors. NBTS supports research initiatives which advance the understanding of brain tumors in order to find new and more effective treatments. NBTS provides free publications, such as "Frankly Speaking about Cancer: Brain Tumors," a resource guide that provides information on brain tumors in an easy-to-read format. NBTS also has information on their website to help brain tumor survivors and their families connect with support programs and organizations.
Categories: Brain, Advocacy, Support Groups

Suite 1300
1101 17th Street, NW.
Washington, DC 20036
Local Phone: 202-296-7477 (Responds to calls in English only)
Free Line: 1-800-622-2838 (Responds to calls in English only)
info@stopbreastcancer.org
The National Breast Cancer Coalition (NBCC) is the nation's largest breast cancer advocacy group. NBCC's sister organization, the National Breast Cancer Coalition Fund (NBCCF), empowers and trains NBCC members to take a leadership role beside legislative, scientific, and clinical decisionmakers. Once trained, these advocates represent NBCC as they influence public policies that impact breast cancer research, diagnosis, and treatment. NBCC is developing a patient-focused Web site that provides information on research, screening and risk, diagnosis and testing, treatment options, and quality of life. The NBCCF booklet, How to Get Good Care for Breast Cancer, contains essential messages about quality care and focuses on empowering patients to ask questions and learn about evidence-based care.
Categories: Breast, Advocacy

PO Box 13827
Research Triangle Park, NC 27709
Local Phone: 818-992-4242 (Responds to calls in English only)
Free Line: 1-800-685-5531 (Responds to calls in English only)
nccc@ashasexualhealth.org
The National Cervical Cancer Coalition (NCCC) is a nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. Its mission is to promote prevention through education about early vaccination, Pap testing and HPV testing, when recommended. Services include access to online educational materials (publications, videos and webinars), a variety of patient and family support resources, and information on free/low-cost Pap testing. Some resources are available in Spanish.
Categories: Cervical, Screening, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups

Suite 770
1010 Wayne Avenue
Silver Spring, MD 20910
Local Phone: 301-650-9127 (Responds to calls in English only)
Free Line: 1-888-650-9127 (Responds to calls in English only); 1-877-622-7937 (1-877-NCCS-YES) (To Order Cancer Survival Toolbox®) (Responds to calls in English only)
info@canceradvocacy.org
The National Coalition for Cancer Survivorship (NCCS) is a survivor-led cancer advocacy organization. NCCS’s primary goal is to advocate for quality cancer care for all Americans and empower cancer survivors. Resources provided include the Cancer Survival Toolbox® (free, self-learning audio program), NCCS publications, Surviving with Confidence program (dispels misconceptions about chemotherapy), Cancer Care Planning, and Journey Forward (program that promotes clear steps for care and monitoring after active cancer treatment). NCCS also provides a Resource Guide, a database of organizations that can be searched based on cancer type, treatment issues, side effects, cancer-related information (e.g., long-term survival clinics), and state.
Categories: Advocacy, Educational Programs

Suite 435
2501 Oak Lawn Avenue
Dallas, TX 75219
Local Phone: 214-273-4200 (Responds to calls in English only)
Free Line: 1-888-682-7426 (1-888-OVARIAN) (Responds to calls in English only)
nocc@ovarian.org
The National Ovarian Cancer Coalition (NOCC) is committed to raising awareness of ovarian cancer in communities across the country and providing education and support for women with ovarian cancer and their families. NOCC has a toll-free number for information, referral, support, and education about ovarian cancer. NOCC also offers support groups, a national newsletter, and educational materials on issues such as symptoms, risk factors, and treatment. Committed volunteers continue to build a network of NOCC Chapters throughout the country to advance the ovarian cancer awareness movement in local communities.
Categories: Ovarian, Advocacy, Educational Programs , Peer/Buddy Programs

Number 205
3419 Via Lido
Newport Beach, CA 92663
Local Phone: 949-723-4400
info@oralcancerfoundation.org
The Oral Cancer Foundation (OCF) is a nonprofit organization that provides information, patient support, research, and advocacy on oral cancer. Online materials include detailed information on risk factors, diagnosis, and treatment of oral cancers, as well as access to a free Patient/Survivor Forum. A comprehensive list of resources is available to help patients find additional information, including: support organizations, financial assistance, governmental agencies, private cancer foundations, and cancer treatment and research centers.
Categories: Oral, Advocacy, Educational Programs , Peer/Buddy Programs

Suite 1190
910 17th Street, NW.
Washington, DC 20006
Local Phone: 202-331-1332 (Responds to calls in English only)
Free Line: 1-866-399-6262 (Responds to calls in English only); 1-800-535-1682 (OCNA Clinical Trials Matching Service) (Responds to calls in English and Spanish)
ocna@ovariancancer.org
The Ovarian Cancer National Alliance (OCNA) advances the interests of women with ovarian cancer by advocating for increased federal funding for ovarian cancer research; increasing awareness that early recognition of symptoms is the best way to save lives; and educating medical and other health care professionals about ovarian cancer diagnosis and the need to provide referrals to gynecologic oncologists. OCNA has a “Survivors Teaching Students: Saving Women’s Lives” program that enhances medical, nursing, and physician assistant students’ understanding of ovarian cancer symptoms and risk factors. The Ovarian Cancer National Alliance Clinical Trials Matching Service provides information on current clinical trials in the United States and Canada. Women can customize their searches based on a range of criteria that includes the specific ovarian cancer type, stage, treatment history, and place where she can enroll. A Clinical Trial Specialist is assigned to each caller to guide her through her confidential search.
Categories: Ovarian, Advocacy, Educational Programs

1500 Rosecrans Avenue
Suite 200
Manhattan Beach, CA 90266
Local Phone: 310-725-0025 (Responds to calls in English and Spanish)
Free Line: 1-877-272-6226 (1-877-2-PANCAN) (Responds to calls in English and Spanish)
info@pancan.org
The Pancreatic Cancer Action Network (PanCAN) is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer. PanCAN provides patients, loved ones and healthcare professionals with free, in-depth and personalized resources and information on pancreatic cancer, including support services, such as:

Survivor & Caregiver Network, matching patients and loved ones with others who have been in their shoes
Clinical trials searches
Know Your Tumor® precision medicine service
Educational webinars
Lists of pancreatic cancer specialists
Local activities and opportunities to connect with others in the community

Information is available in English and Spanish.

PanCAN’s Patient Registry also gives patients and caregivers the opportunity to help advance research by sharing their experiences in an online database.
Categories: Pancreas, Advocacy, Educational Programs , Health Professional Referrals, Peer/Buddy Programs

Suite 250
5005 LBJ Freeway
Dallas, TX 75244
Free Line: 1-877-465-6636 (1-877 GO KOMEN) (Responds to calls in English and Spanish)
Susan G. Komen for the Cure® is a grassroots network of breast cancer survivors and activists working together to save lives, empower people, ensure quality care for all and energize science to find the cures. The 1-877 GO KOMEN helpline provides free, professional support services to anyone with breast health and breast cancer concerns, including breast cancer patients and their families. Susan G. Komen for the Cure has funded research grants and community-based outreach projects that focus on breast health education and breast cancer screening and treatment for the medically underserved. Staff can respond to calls in Spanish, some publications are available in Spanish. A version of their Web site is available in Spanish.
Categories: Breast, Scholarships & Camps, Advocacy

80 Broad Street
Suite 1700
New York, NY 10004
Local Phone: 646-257-3000 (Responds to calls in English only)
Free Line: 1-877-972-1011 (1-877-YSC-1011) (Responds to calls in English only)
info@youngsurvival.org
The Young Survival Coalition (YSC) focuses on issues unique to young women who are diagnosed with breast cancer. YSC works with survivors, caregivers, and the medical, research, advocacy, and legislative communities to improve the quality of life for breast cancer patients age 40 and younger. YSC can help young survivors find a support group, or match survivors with volunteers who’ve had a similar experience. YSC offers online resources including educational and support materials, discussion boards, and information about conferences and symposia.

Some publications are available in Spanish, and Spanish-speaking volunteers are available to serve as survivor matches in its peer-support program.
Categories: Breast, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
Inclusion in this list does not imply endorsement by the National Cancer Institute. Please submit this form if you would like us to consider adding your organization. The form also describes our inclusion criteria.