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4th Angel Mentoring Program
9500 Euclid Avenue
Cleveland, OH 44195
Local Phone: 216-445-8734 (Responds to calls in English only)
Free Line: 1-866-520-3197 (Responds to calls in English only)
The 4th Angel Mentoring Program is a survivorship program launched by The Scott Hamilton CARES Initiative that provides free and confidential telephone or e-mail support to cancer patients and their caregivers. Trained mentors, who are cancer survivors themselves or have been a caregiver to a cancer patient, offer guidance and support. The program ensures that participants are paired (matched) based on similar characteristics including gender, age, cancer diagnosis, and treatment type. Opportunities are also available for cancer survivors and their caregivers to volunteer as mentors.
Categories: Peer/Buddy Programs
ABCD: After Breast Cancer Diagnosis
5775 N. Glen Park Rd., #201
Madison, WI 53209 Free Line: 1-800-977-4121
ABCD provides free, personalized information and one-to-one support to people affected by breast cancer and their family and friends.
Air Charity Network™
Free Line: 1-877-621-7177 (Responds to calls in English only)
Air Charity Network™ (ACN) is a national, nonprofit organization serving all 50 states. ACN is comprised of independent member organizations identified by specific geographical service areas. ACN’s volunteer pilots provide free air transportation to specialized health care facilities for people in need or who are otherwise unable to travel on public transportation. Passengers must be medically stable, ambulatory and able to sit up in an airplane seat for the duration of the flight. More information about passenger qualifications is available on the website. Call the toll-free number or visit the website to find the contact information for the affiliate that serves your area.
Categories: Lodging & Travel
American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
Local Phone: 847-827-9910 (Responds to calls in English only)
Free Line: 1-800-886-2282 (1-800-886-ABTA) (Responds to calls in English only)
The mission of the American Brain Tumor Association (ABTA) is to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. The ABTA offers information about tumors and treatment, care and support, and research progress for cancer patients, family members, and health professionals. Information is also available on their Web site targeting caregivers, and adolescents and young adults. ABTA produces Resource Sheets on many topics including financial support, health insurance, and reaching out for support. A Pen Pal Program is available that matches up brain tumor patients/survivors with one another on a one-to-one basis. This program is also available for caregivers, family members, and friends.
Categories: Brain, Peer/Buddy Programs
American Cancer Society
250 Williams Street
Atlanta, GA 30303 Local Phone: 404-320-3333 (Responds to calls in English only) Free Line: 1-800-227-2345 (1-800-ACS-2345) (Responds to calls in English and Spanish) TTY: 1-866-228-4327 TTY Line: 1-866-228-4327
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. The ACS offers a variety of services and programs for patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Staff can accept calls and distribute publications in Spanish.
Support programs include:
Online support communities
Health Insurance Assistance Service:
assistance to cancer patients and survivors who have lost, or are in danger of losing, their health care coverage
lodging for patients and caregivers
I Can Cope:
online cancer education classes for patients and loved ones
Patient Navigator Program:
personal cancer guide
Reach to Recovery:
breast cancer support
Road to Recovery:
rides to treatment
Tender Loving Care(tlc):
catalog and website of hair loss and mastectomy products
In addition to these ACS-supported programs, the ACS has a database of other local and national programs that offer services to cancer patients and their loved ones. For information on these and other services, visit the
Support Programs and Services webpage
or call the toll-free number above.
Categories: Health Insurance (includes co-payments), Lodging & Travel, Medical Supplies, Wigs, Prostheses , Medication (includes co-payments), Screening, Treatment, Peer/Buddy Programs , Support Groups
American Childhood Cancer Organization
Post Office Box 498 (Mailing Address)
Suite A, 10920 Connecticut Avenue (Physical Address)
Kensington, MD 20895
Local Phone: 301-962-3520 (Responds to calls in English only)
Free Line: 1-855-858-2226 (Responds to calls in English only)
The American Childhood Cancer Organization (ACCO) is a nonprofit organization that provides information for children and adolescents with cancer and their families, advocates for their needs, and supports research. ACCO publishes books on childhood cancer that provide information on all aspects of a diagnosis of childhood cancer (treatment information, financial help, emotional and social issues, late effects of treatment, and more). ACCO will provide a free copy of any of their books to families of children with cancer. ACCO has over 40 local chapters (affiliates) that provide direct support to patients and families through hospital and community based programs, such as face-to-face and online support groups and day and sleepover childhood cancer camps. Affiliates also provide emergency financial assistance for rent or mortgage payments, car repairs, transportation, pre-paid gas cards, groceries, parking, and more. ACCO maintains a list of other organizations to which eligible families may apply for financial assistance.
Categories: Childhood, General Living Expenses, Lodging & Travel, Scholarships & Camps, Advocacy, Support Groups
American Institute for Cancer Research
1759 R Street, NW.
Washington, DC 20009
Local Phone: 202-328-7744 (Responds to calls in English and Spanish)
Free Line: 1-800-843-8114 (Responds to calls in English and Spanish)
The American Institute for Cancer Research (AICR) funds research on the relationship of nutrition, physical activity, and weight management to cancer risk, interprets scientific literature on cancer prevention, and educates people about choices they can make to reduce their chances of developing cancer. The Institute offers a toll-free nutrition hotline, consumer and health professional brochures, bi-weekly eNews and e-mail updates, and hosts an annual research conference. A limited selection of Spanish-language publications is available. AICR provides nutritional information for cancer patients during and after treatment. AICR's "Food for the Fight DVD" contains information on managing your diet during treatment, changes to make to prevent recurrence, personal accounts, cooking demonstrations, and insights from physicians, researchers, and nutritionists on the role of nutrition.
Categories: Educational Programs
American Psychosocial Oncology Society
154 Hansen Road
Charlottesville, VA 22911
Local Phone: 434-293-5350 (Administrative Office) (Responds to calls in English only)
Free Line: 1-866-276-7443 (1-866-APOS-4-HELP) (Helpline) (Responds to calls in English only)
The mission of the American Psychosocial Oncology Society (APOS) is to advance the science and practice of psychosocial care for people with cancer. APOS strives to ensure that all people with cancer have access to psychosocial services as a part of their quality cancer care. APOS offers a toll-free Helpline to help people with cancer, caregivers, and advocacy organizations find local counseling services throughout the United States. The program connects cancer patients and their caregivers to psychiatrists, psychologists, nurses, social workers, and counselors skilled in the management of cancer-related diseases. APOS also offers online continuing education courses for health professionals, including multidisciplinary training in psycho-oncology.
Categories: Counseling, Health Professional Referrals
Be the Match ®
3001 Broadway St., N.E.
Minneapolis, MN 55413-1753
Local Phone: 612-627-8140 (outside U.S. about patient services)
612-627-5800 (outside U.S. about the Be the Match registry)
Free Line: 1-800-627-7692 (1-800-MARROW2) for general information
1-888-999-6743 for Be the Match patient services
Operated by the National Marrow Donor Program, Be the Match is the largest and most diverse bone marrow registry in the world. The registry includes more than 10 million volunteers willing to donate bone marrow and 185,000 units of donated umbilical cord blood.
Be the Match also supports patients, caregivers, and families before, during, and after a transplant through one-on-one support, referrals and free educational resources. They also offer financial aid programs to help patients pay for the cost of a donor search and for some post-transplant expenses. Calls are answered in English and Spanish
Categories: Treatment, Health Professional Referrals
Free Line: 1-800-333-4636 (1-800-FED-INFO) (Responds to calls in English and Spanish)
Benefits.gov (formerly GovBenefits.gov) is the official benefits Web site of the U.S. Government. The Web site is designed to help users find government benefit and assistance programs for which they may be eligible. The Benefit Finder on the Web site has a list of Core Questions to identify which government benefits you may be eligible to receive.
Categories: General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Scholarships & Camps, Counseling
Bladder Cancer Advocacy Network
4915 St. Elmo Ave., Suite 202
Bethesda, MD 20814 Local Phone: 301-215-9099 (Responds to calls in English only) Free Line: 1-888-901-2226 (1-888-901-BCAN) (Responds to calls in English only)
The Bladder Cancer Advocacy Network (BCAN) is a nonprofit organization dedicated to increasing public awareness about bladder cancer, advancing bladder cancer research, and providing educational and support services for the bladder cancer community. BCAN offers an online support community and in-person support groups where survivors, families, friends, and caregivers can connect. The Bladder Cancer Profiler (available on the BCAN Web site) is an interactive tool designed to help patients make treatment decisions. BCAN conducts patient forums at various sites across the country and brings together medical professionals, researchers, bladder cancer patients, caregivers, and loved ones.
Categories: Bladder, Other Cancers, Advocacy, Support Groups
Post Office Box 1113
Lafayette, CA 94549
Local Phone: 925-212-9044 (Responds to calls in English only); 925-550-5698 (Responds to calls in English only)
Camp Kesem is a one-week overnight summer camp for kids with a parent who has (or has had) cancer. The camps are run by college students and are primarily for kids ages 6-13, with a few teen programs for campers ages 14-16. The camps are free and are intended to provide the campers with the extra attention and support they need. The camper to counselor ratio is 2:1.
Categories: Scholarships & Camps
Cancer and Careers
286 Madison Avenue
New York, NY 10017
Local Phone: 212-685-5955, ext. 132 (Responds to calls in English only)
Cancer and Careers empowers and educates people with cancer so that they may thrive in their workplace. The organization provides a comprehensive Web site (in both English and Spanish), free publications, career coaching, and a series of support groups and educational seminars. Resources are geared toward employees with cancer and their healthcare providers and coworkers. Cancer and Careers is a program of the CEW Foundation, the charitable arm of Cosmetic Executive Women, Inc., a nonprofit trade organization of executives in the beauty, cosmetics, fragrance, and related industries.
Categories: Educational Programs , Legal Issues, Support Groups
Cancer Financial Assistance Coalition
The Cancer Financial Assistance Coalition (CFAC) is a coalition of organizations that help cancer patients manage their financial challenges by educating them about existing resources. Patients or health care providers can search the CFAC database for organizations that help with specific cancer diagnoses or that provide a specific type of assistance or need. CFAC is a coalition of organizations and cannot respond to individual requests for financial assistance via e-mail or telephone. Patients may contact each CFAC member organization individually for guidance and possible financial assistance.
Categories: General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Medical Supplies, Wigs, Prostheses , Medication (includes co-payments), Scholarships & Camps, Treatment
Cancer Hope Network
Two North Road
Chester, NJ 07930
Local Phone: 908-879-4039 (Responds to calls in English and Spanish)
Free Line: 1-800-552-4366 (Responds to calls in English and Spanish)
Cancer Hope Network is a nonprofit organization that provides free and confidential one-on-one support to cancer patients and their families in the United States, Puerto Rico, the U.S. Virgin Islands, and Canada. Support is provided by matching cancer patients and/or family members with trained volunteers who have undergone and recovered from a similar cancer experience. Matches are based on the type of cancer, the similarity of treatment(s), the side effects experienced, and overall demographics (age, gender, etc.).
Categories: Peer/Buddy Programs
Cancer Legal Resource Center
800 South Figueroa Street
Los Angeles, CA 90017
Local Phone: 213-736-1455
Free Line: 1-866-843-2572 (1-866-THE-CLRC) (Responds to calls in English and Spanish)
TTY Line: 213-736-8310
The Cancer Legal Resource Center (CLRC) is a joint program of the Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides free information and resources on cancer-related legal issues to people with cancer, survivors, caregivers, employers, health care professionals, and others coping with cancer. The CLRC has a national toll-free line where callers can receive information about relevant laws and resources for their particular situation. The CLRC volunteer panel of attorneys and other professionals provides more in-depth information and counsel to CLRC callers. Extensive resources are available on a broad range of cancer-related legal issues, including health insurance, employment, government benefits, estate planning, advance health care directives, family law, and consumer assistance. CLRC provides services in Spanish and has bilingual staff who are able to assist people on the toll-free line. Some publications are also available in Spanish.
Categories: Legal Issues
The Cancer Project
5100 Wisconsin Avenue, NW.
Washington, DC 20016
Local Phone: 202-244-5038 (Responds to calls in English only)
The Cancer Project is a collaborative effort of physicians, researchers, and nutritionists to advance cancer prevention and improve survival after cancer has been diagnosed by providing comprehensive information about the role of dietary factors in keeping people healthy. The Cancer Project provides classes, books, video programs, fact sheets, brochures, and other educational materials on cancer prevention and survival. The organization conducts research studies to investigate dietary issues and publicizes the need for cancer prevention and the value of healthy diet changes. The Cancer Project’s free hands-on nutrition classes (Food for Life) help cancer survivors and their families learn new tastes and easy food preparation skills. A limited selection of Spanish-language publications is available.
Categories: Educational Programs
Cancer Support Community
Suite 500, 1050 17th Street, NW.
Washington, DC 20036
Local Phone: 202-659-9709 (Responds to calls in English only)
Free Line: 1-888-793-9355 (Responds to calls in English only)
The Cancer Support Community (CSC) is dedicated to providing support, education and hope to people affected by cancer. It offers a global network of personalized services and education for all people affected by cancer. These free services include support groups, counseling, education, and healthy lifestyle programs. These support services are available online and through a network of 50 local affiliates with more than 100 satellite locations. CSC also offers online bereavement support groups.
Categories: Counseling, Educational Programs , Support Groups
275 Seventh Avenue
New York, NY 10001
Local Phone: 212-712-8400 (Administrative)
Free Line: 1-800-813-4673 (1-800-813-HOPE) (Responds to calls in English and Spanish)
CancerCare provides free professional support for anyone affected by cancer. CancerCare programs include counseling and support groups, cancer education workshops, information on financial assistance, and practical help. Counseling is provided by oncology social workers and is available over the phone and face-to-face (available at offices in New York City, Long Island, New Jersey, and Connecticut). Support groups are offered online, via telephone, and in face-to-face groups. CancerCare also provides free publications, including some in Spanish.
CancerCare also provides limited financial assistance to people affected by cancer. For men and women with breast cancer, limited assistance is available for pain and anti-nausea medication, oral hormonal medication, lymphedema support and durable medical equipment. Assistance with costs of transportation, home care and child care may be available depending on the patient’s location and diagnosis.
For details about eligibility, currently available funding and how to apply, visit the website (
) or call the toll-free number above. If assistance is not available, CancerCare’s oncology social workers can refer to other financial assistance resources.
Co-payment assistance for chemotherapy and targeted therapy drugs might also be available from CancerCare. For information, contact the CancerCare Co-payment Assistance Foundation (1-866-552-6729;
Categories: Breast, General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Medical Supplies, Wigs, Prostheses , Medication (includes co-payments), Treatment, Counseling, Educational Programs , Support Groups
CancerCare Co-Payment Assistance Foundation
275 Seventh Avenue
New York, NY 10001
Local Phone: 212-601-9750 (Responds to calls in English and Spanish)
Free Line: 1-866-552-6729 (1-866-55-COPAY) (Responds to calls in English and Spanish)
The CancerCare Co-Payment Assistance Foundation is a nonprofit organization that helps people being treated for cancer afford insurance co-payments for chemotherapy and targeted treatment drugs. To qualify for assistance, patients must meet certain criteria related to their financial, medical, and insurance situation. Patients must currently be in active chemotherapy or targeted treatment when they apply and at the time of approval. The types of cancer covered by the Foundation vary. For the latest information on eligibility and available funding, contact the Foundation or visit the website.
Categories: Health Insurance (includes co-payments), Medication (includes co-payments), Treatment
Caritas Internationalis Headquarters
Palazzo San Calisto
Vatican City State V-00120
Local Phone: + 39 06 698 797 99
Caritas Internationalis is a network of 165 Catholic organizations working in humanitarian emergencies and international development in over 200 countries and territories. Caritas is devoted to reducing poverty and campaigning for social justice. Caritas works in six main areas: peace & reconciliation, emergencies, economic justice, climate change, HIV & AIDS, and women & migration. Information on the organization's Web site is also available in Spanish and French.
Catholic Charities USA
Sixty-Six Canal Center Plaza
Alexandria, VA 22314
Local Phone: 703-549-1390 (Responds to calls in English only)
Catholic Charities USA is the national office for local Catholic Charities agencies and affiliates nationwide. Catholic Charities USA provides strong leadership and support to enhance the work of local agencies to reduce poverty, support families, and empower communities. Services provided by Catholic Charities USA include providing food (food banks, soup kitchens, home delivered meals, congregate dining), building strong communities (education, health-related services), strengthening families (counseling and mental health, refugee services, immigration services, addiction services, pregnancy and adoption services), and providing housing-related services (temporary shelter, supervised living, permanent housing, transitional housing).
Categories: General Living Expenses, Lodging & Travel, Counseling
Children's Brain Tumor Foundation
274 Madison Avenue
New York, NY 10016
Local Phone: 212-448-9494 (Responds to calls in English and Spanish)
Free Line: 1-866-228-4673 (1-866-228-HOPE) (Responds to calls in English and Spanish)
The Children's Brain Tumor Foundation (CBTF) is a nonprofit organization whose mission is to improve the treatment, quality of life, and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy for families and survivors.
CBTF has a free publication, A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors, and also co-sponsors conferences, teleconferences, and webinars for families, survivors, and health care professionals. CBTF offers a toll-free support line where you may speak with pediatric neuro-oncology social workers. CBTF's Family 2 Family Network allows families to share their experiences with those having similar concerns. CBTF also hosts and sponsors events, such as the Kids Cruise or Brain Tumor Week at Camp Sunshine, which offer families fun while building relationships within the community. The Children's Brain Tumor Foundation funds research to identify the causes of childhood brain tumors to find effective treatments.
Categories: Brain, Childhood, Other Cancers, Scholarships & Camps, Educational Programs , Peer/Buddy Programs
Children's Health Insurance Program
Free Line: 1-877-543-7669 (1-877-KIDS-NOW) (Responds to calls in English and Spanish)
The Children's Health Insurance Program (CHIP) is a state and federal partnership that provides free or low-cost health coverage for children age 18 and younger childhood whose families earn too much income to qualify for Medicaid but cannot afford to purchase private health insurance coverage. States have considerable flexibility to establish income eligibility rules for CHIP, but children enrolling in the program must be otherwise uninsured. Callers will be referred to the CHIP program in their state for further information about what the program covers, who is eligible, and the minimum qualifications.
Categories: Childhood, Health Insurance (includes co-payments), Health Professional Referrals
The Cholangiocarcinoma Foundation
5526 West 13400 South
Salt Lake City, UT 84096
Local Phone: 801-999-0455 (Responds to calls in English only)
The Cholangiocarcinoma Foundation strives to unite patients, physicians, caregivers, and public and private institutions in the collaboration, understanding, research, and education of cholangiocarcinoma (bile duct cancer). Their mission is to find a cure and improve the quality of life for those affected by cholangiocarcinoma We fund research, offer an annual conference, and provide patient/caregiver education and advocacy. We offer publications in English, Spanish, Japanese and Chinese.
Categories: Other Cancers, Support Groups
Cleaning for a Reason Foundation
Post Office Box 146
Lewisville, TX 75067
The Cleaning for a Reason Foundation offers free professional housecleaning and maid services for women undergoing cancer treatment. Women age 18 or older currently undergoing cancer treatment for any type of cancer qualify for this service. The Foundation recruits professional residential maid services that are insured and/or bonded (and performs background checks on their employees). Maid service partners are located in all 50 states, D.C., and Canada. The companies offer four free cleanings - one a month for four months. The Foundation accepts cancer patient applications online, obtains doctor verification of treatment, and then matches patients with their partner maid services. Interested applicants should see if a maid service partner is available in their area by clicking on the "Locations" tab on the Foundation's Web site (see link in Additional Resources section below). The application process is handled through the Foundation - do not contact the maid services directly.
Categories: General Living Expenses
Co-Pay Relief Program
421 Butler Farm Road
Hampton, VA 23666 Local Phone: 757-952-0118 (Responds to calls in English only) Free Line: 1-866-512-3861 (Responds to calls in English only)
The Patient Advocate Foundation's Co-Pay Relief (CPR) program provides co-payment assistance to insured Americans who financially and medically qualify. CPR provides direct financial assistance to qualified patients by offering co-payment assistance for pharmaceutical products (chemotherapy, injections, and pharmacy prescriptions). CPR call counselors work directly with the patient, as well as with the provider of care, to obtain necessary medical, insurance, and income information to advance the application process. CPR assists patients diagnosed with certain conditions; contact the program to find out if you are eligible for assistance. Information on the Web site is also available in Spanish.
Categories: Medication (includes co-payments)
Colon Cancer Alliance
1025 Vermont Avenue, NW.
Washington, DC 20005
Local Phone: 202-628-0123 (Responds to calls in English only)
Free Line: 1-877-422-2030 (Helpline) (Responds to calls in English only); 1-866-278-0392 (Clinical Trials Matching Service) (Responds to calls in English only)
The Colon Cancer Alliance (CCA) is a national patient advocacy organization dedicated increasing colorectal screening rates and survivorship. CCA provides patient support, offers educational resources, focuses on advocacy work for colon cancer patients and their families, and works with other organizations to increase research funding. CCA provides a Helpline and the CCA Buddy Program, which matches survivors and caregivers with others in a similar situation for one-on-one support. CCA Chapters are available in some states.
Categories: Colorectal, Advocacy, Peer/Buddy Programs
Colorectal Cancer Control Program
Mail Stop K-64
4770 Buford Highway, NE.
Atlanta, GA 30341
Free Line: 1-800-232-4636 (1-800-CDC-INFO) (Responds to calls in English and Spanish)
TTY Line: 1-888-232-6348
The Centers for Disease Control and Prevention’s (CDC) Colorectal Cancer Control Program (CRCCP) provides funding to 22 states and 4 tribal organizations across the United States until 2014. The program provides colorectal cancer screening and follow-up care to low-income men and women age 50-64 who are underinsured or uninsured. When possible, screening services are integrated with other publicly funded health programs or clinics that serve underserved populations, such as CDC’s National Breast and Cervical Early Detection Program, CDC’s WISEWOMAN Program, and the Health Resources and Services Administration’s Health Centers. Another component of CDC’s CRCCP is to increase colorectal screening by using evidence-based strategies to promote screening.
The 22 states and 4 tribal organizations that received funding are Alabama, Arizona, California, Colorado, Connecticut, Delaware, Florida, Iowa, Maine, Maryland, Massachusetts, Minnesota, Montana, Nebraska, New Hampshire, New Mexico, New York, Oregon, Pennsylvania, South Dakota, Utah, Washington, Alaska Native Tribal Health Consortium, Arctic Slope Native Association Screening for Life Program, South Puget Intertribal Planning Agency, and Southcentral Foundation.
Categories: Colorectal, Screening
Corporate Angel Network
Westchester County Airport
One Loop Road
White Plains, NY 10604
Local Phone: 914-328-1313 (Responds to calls in English only)
Free Line: 1-866-328-1313 (Patient Line) (Responds to calls in English only)
The Corporate Angel Network arranges over 2,500 free flights per year on corporate jets (using the empty seats on corporate aircraft flying on routine business) for all cancer patients, bone marrow donors, and bone marrow recipients who are able to walk up and down the steps to a private plane without assistance and do not require oxygen, IV, or any other form of life support during the flight. Eligibility is not based on financial need, and patients may travel as often as necessary. Transportation is provided only if patients travel to or from a recognized cancer treatment center (American College of Surgeons or National Cancer Institute-designated Cancer Center).
To obtain free air transportation, contact the Corporate Angel Network Toll-Free Patient Line or via e-mail to register within 3 weeks of a specific appointment at a recognized cancer treatment center and provide a phone number where you can be reached. Back-up travel arrangements should be made with a travel agency or airline because the Corporate Angel Network cannot guarantee a flight.
Categories: Lodging & Travel
CureSearch for Children's Cancer
4600 East West Highway
Bethesda, MD 20814-3457
Free Line: Toll Free: 1-800-458-6223
CureSearch for Children's Cancer is a national non-profit foundation that funds and supports innovative childhood cancer research at all points along the research continuum from fellowships for young investigators to funding research which may lead to new treatments. The website also provides information and resources for patients and loved ones affected by children's cancer. Topics include school support, community support, grieving and palliative care.
Categories: Childhood, Support Groups
Free Line: 1-800-677-1116 (Responds to calls in 150 languages)
TTY Line: Dial “711” for relay, ask to connect to 1-800-677-1116
Eldercare Locator is a public service of the U.S. Administration on Aging and helps older adults and their families access home and community-based services, including transportation, meals, home care, and caregiver support services. The goal is to provide users with the information and resources they need to help older persons live independently and safely in their homes and communities for as long as possible.
Categories: General Living Expenses, Lodging & Travel
Fertility Within Reach
1005 Boylston Street #332
Newton Highlands, MA 02461
Local Phone: 857-636-8674
Fertility Within Reach (FWR) is a national, non-profit organization which aims to increase access to assisted reproductive treatment for those who need it. They provide education and resources to help people access infertility health benefits. FWR’s Banking on the Future program awards financial grants to cover the cost of storing reproductive cells of adolescent and young adult cancer patients (post puberty up to the age of 21) prior to treatment. For more information about this program and to access the application please visit the link below or contact FWR at the email address or phone number above.
Fight Colorectal Cancer
1414 Prince Street
Alexandria, VA 22314
Local Phone: 703-548-1225 (Responds to call in English only)
Free Line: 1-877-427-2111 (1-877-4CRC-111) (Responds to calls in English and Spanish)
Fight Colorectal Cancer is a community of activists who find it unacceptable that colorectal cancer - a preventable disease - is the second-leading cause of cancer deaths in the U.S. In 2005, we were founded by survivors and family members who believed in making a difference.
Since then we have grown to be a leading, national nonprofit based in Washington, D.C. known for our advocacy. Our team plays an important role in making medical information practical for survivors and their families and provides trusted resources that guide patients from diagnosis through survivorship. We unite the colorectal cancer community by empowering anyone impacted by this disease to share their story, advocate for better policies and get involved in the research process. Our Research Advocacy Training and Support (RATS) program trains advocates who participate in the research process. We are one million strong and we won't stop fighting until there's a cure.
Categories: Colorectal, Advocacy, Educational Programs
FinAid! The SmartStudent Guide to Financial Aid
FinAid! The SmartStudent Guide to Financial Aid is a Web site that contains comprehensive student financial aid information. Access to FinAid is free for all users and there is no charge to link to the site. The Web site has a page with information about scholarships for cancer patients, childhood cancer survivors, children of a cancer patient or survivor, students who have lost a parent to cancer, and students pursuing careers in cancer treatment.
Categories: Childhood, Scholarships & Camps
767 Santa Fe Drive
Denver, CO 80204
Local Phone: 303-945-2490
First Descents offers young adults with cancer (ages 18 to 39) a free weeklong outdoor adventure experience where they will learn to surf, kayak and climb. Each session is limited to 15 participants and ensures individualized care, medical attention and an intimate experience with fellow survivors. These programs are available to young adults with cancer regardless of financial means. All program costs (food, lodging and activities) are provided free of charge. Travel scholarships are available and are awarded based on need. The programs are offered from April through October and take place across the U.S. and internationally.
Categories: Scholarships & Camps
FORCE: Facing Our Risk of Cancer Empowered
16057 Tampa Palms Boulevard, West
Tampa, FL 33647
Free Line: 1-866-288-7475 (1-866-288-RISK) (Responds to calls in English only)
FORCE: Facing our Risk of Cancer Empowered is a national nonprofit organization dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. FORCE offers a toll-free, peer-support helpline staffed by volunteers who can discuss issues with callers, offer referrals to resources, or match callers with another peer counselor with similar experiences. FORCE also provides access to board-certified genetic counselors to answer general questions about genetics. Publications such as newsletters, brochures, and other print materials are available on the Web site.
Categories: Breast, Ovarian, Health Professional Referrals, Peer/Buddy Programs
Free to Breathe
1 Point Place, Suite 200
Madison, WI 53719
Local Phone: 608-833-7905
Free to Breathe is a lung cancer advocacy organization that works to increase lung cancer awareness and to fund research with the greatest potential to save lives. Free to Breathe supports a nationwide network of grassroots lung cancer advocates through its program. Information and free publications about lung cancer are available on their website including an information kit for newly diagnosed patients. One of the booklets titled, "Living with a Diagnosis of Lung Cancer" is available in Spanish.
Categories: Advocacy, Lung
Friend for Life Cancer Support Network
4007 Kresge Way
Louisville, KY 40207
Local Phone: (502) 893-0643
Free Line: 1-866-374-3634 (English and Spanish)
Friend for Life Cancer Support Network (FFL) is a network of cancer survivors who provide one-on-one support to cancer patients and their loved ones. These services are free of charge. Friend for Life will match recently diagnosed patients with a trained volunteer who has experienced the same type of cancer and similar course of treatment. When possible, volunteers are also matched for age and gender. One-on-one support is mainly offered via telephone. Some volunteers are bilingual and services may be available in Spanish as well as other languages. Contact FFL for further details.
Categories: Peer/Buddy Programs
6900 North Dallas Parkway
Plano, TX 75024
Local Phone: 972-608-7141 (Responds to calls in English only)
Free Line: 1-877-968-7233 (Responds to calls in English only, 8am-5pm CST)
Good Days, formerly known as the Chronic Disease Fund (CDF), helps patients with chronic medical conditions (including cancer) who have limited financial means get access to the medications they need. Good Days helps qualified patients pay their insurance co-pays so they can get access to prescription medications. The organization assists patients throughout the United States who meet income guidelines and have valid medical insurance coverage.
Good Days also offers assistance with costs related to travel for healthcare appointments such as transportation, lodging, parking, fuel and meals. The diseases and drugs covered may vary throughout the year depending on funding; for current information visit the website or call Good Days at the number above.
Categories: Lodging & Travel, Medication (includes co-payments)
Healthcare Hospitality Network
P.O. Box 1439
Gresham, OR 97030
Free Line: Toll Free: 1-800-542-9730
The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of nonprofit organizations that provide lodging and support services to patients, families, and their loved ones who are receiving medical treatment far from their home communities. These hospital hospitality houses provide free or reduced-cost lodging. To locate lodging, contact HHN at the toll-free number or search at the link below:
Categories: Lodging & Travel
200 Independence Avenue, SW.
Washington, DC 20201
Local Phone: Help Center: 1-800-318-2596 (available for questions 24/7)
Free Line: Live Chat available online at
HealthCare.gov is the first U.S. Department of Health and Human Services central database of health coverage options, combining information about public programs (e.g., Medicare, Medicaid) with information from more than 1,000 private insurance plans. Consumers can search online for health insurance options specific to their life situation and local community. Healthcare.gov also has information about the Affordable Care Act (health care reform). The Pre-Existing Condition Insurance Plan, a new program that is part of the Affordable Care Act, makes health insurance coverage available to persons who have been denied coverage by private insurance companies because of a pre-existing condition. Consumers also have access to quality rankings for hospitals via a Hospital Compare interactive Web tool. In the fall of 2010, price estimates for health insurance plans will be available online and all new health insurance plans will be required to cover evidence-based preventive services, including screenings and vaccinations, at no cost.
Categories: Health Insurance (includes co-payments), Educational Programs
Post Office Box 4133
Gaithersburg, MD 20878
Free Line: 1-800-675-8416 (Responds to calls in English and Spanish)
The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance copayments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses. To qualify for assistance, you must meet the Foundation's insurance, income, and medical criteria. The Foundation will pre-screen over the telephone and if you qualify you will be sent an application. Another option is to answer a few questions online to immediately learn if you qualify for assistance. The Foundation provides assistance for numerous diseases and medications. A full list of the diseases and medications covered is provided on the Foundation's Web site. The amount of assistance you receive will depend on your income, your insurance coverage, the amount of funding the Foundation has available for assistance, and other factors.
Categories: Health Insurance (includes co-payments), Medication (includes co-payments), Treatment
5600 Fishers Lane Rockville, MD 20857 Free Line: 1-800-638-0742 (Responds to calls in English and Spanish); 1-800-492-0359 (Maryland residents only/Responds to calls in English and Spanish)
Hill-Burton is a program in which health care facilities (hospitals, nursing homes, etc.) that received construction and modernization funds from the Federal Government must provide a reasonable volume of services for free or at low cost to people who meet eligibility guidelines. Information about Hill-Burton facilities is available by calling the toll-free number or visiting the Web site below.
Categories: Screening, Treatment
Hospice Education Institute
Three Unity Square
Post Office Box 98
Machiasport, ME 04655
Local Phone: 207-255-8800 (Responds to calls in English only)
Free Line: 1-800-331-1620 (Hospicelink) (Responds to calls in English only)
The Hospice Education Institute (HEI) is a nonprofit organization serving a wide range of individuals and organizations interested in improving and expanding hospice and palliative care throughout the United States and around the world. The Institute works to inform, educate, and support people seeking or providing care for the dying and the bereaved, or coping with advanced illness. HOSPICELINK is a toll-free service offered by HEI staff that provides information on available hospice and palliative care programs in the United States and general information about the principles and practices of good hospice and palliative care. HEI has a Small Gift Program which makes immediate gifts to hospice patients and families for nonmedical needs, as identified by local hospice staff members. These gifts are made within two working days after the request is reviewed and approved. Books and pamphlets are available from HEI on hospice-related subjects.
Categories: General Living Expenses, Health Professional Referrals
205 W. Randolph, 19th Floor
Chicago, IL 60606
Free Line: 877-274-5529
Imerman Angels provides one-on-one support to cancer patients, survivors, and caregivers in the United States and internationally. Those seeking support are matched with someone with a similar background, either as a patient or caregiver. Matches are based on type of cancer, age, and gender. Volunteers lend support and empathy while helping patients and caregivers navigate the system, determine their options, and create their own support system. Mentors and mentees communicate in whatever way they choose; examples include connecting by telephone, email, video chat, and face-to-face.
Categories: Support Groups
International Association of Laryngectomees
925B Peachtree Street, NE.
Atlanta, GA 30309
Local Phone: 678-767-2955 (Responds to calls in English only)
Free Line: 1-866-425-3678 (1-866-IAL-FORU) (Responds to calls in English only); 1-800-305-0117 (Speak to a Larynx Cancer Survivor in English only)
The International Association of Laryngectomees (IAL) is a nonprofit, voluntary organization composed of member clubs and recognized regional organizations. These clubs are generally known as Lost Chord or New Voice clubs. Club membership ranges from 10 to more than 300 laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts toward the total rehabilitation of the laryngectomee. The IAL exchanges ideas and disseminates information to member clubs and to the public, facilitates the formation of new clubs, fosters improvement in laryngectomee programs, and improves the minimum standards for teachers of post-laryngectomy speech. The IAL Voice Institute trains laryngectomees and prospective instructors of speech in an intensive 5-day course that emphasizes speech restoration as the central component to multidisciplinary total rehabilitation. A directory of laryngectomee-experienced speech instructors in the United States is available on the IAL Web site. Some Spanish materials are also available.
Categories: Head and Neck, Oral, Other Cancers, Educational Programs , Health Professional Referrals, Support Groups
International Cancer Advocacy Network
27 West Morten Ave
Phoenix, AZ 85021-7246
The International Cancer Advocacy Network (ICAN) provides customized advocacy and empowerment tools to late-state cancer patients. ICAN serves patients and people across the United States and in 53 countries.
International Cancer Information Service Group
The International Cancer Information Service Group is a worldwide network of more than 50 organizations that deliver cancer information. The ICISG strives to provide high quality information services and resources on all aspects of cancer to those affected by or concerned about cancer throughout the world. Members share information and expertise and assist groups interested in starting a CIS program. A CIS Tool Box has been developed by ICISG based on the worldwide experiences of people who are managing quality cancer information services. The CIS Tool Box may be used as a planning guide for new CIS offices and offers new ideas for improving and expanding current services. The ICISG provides a list of cancer organizations that provide cancer information in various languages including Chinese, Korean, Spanish and many other languages.
Categories: International, Health Professional Referrals
International Myeloma Foundation
12650 Riverside Drive
North Hollywood, CA 91607
Local Phone: 818-487-7455 (Responds to calls in English and Spanish)
Free Line: 1-800-452-2873 (1-800-452-CURE) (Responds to calls in English and Spanish)
The International Myeloma Foundation (IMF) is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF Hotline answers questions from patients and family members and provides information about medical services, pharmaceutical access, and patient support groups. Free IMF publications include the IMF Multiple Myeloma Patient Handbook; Multiple Myeloma: A Concise Review of the Disease and Treatment Options; and the Understanding Series – treatment specific brochures on new therapies and clinical trials. The Foundation conducts Patients & Family Seminars to educate patients on the latest information about current therapies, research advances, and emerging treatment options. A comprehensive network of support groups from around the world are also available to assist patients and their families. The IMF operates Bank-On-A-Cure®, a unique global gene bank to advance myeloma research. The IMF's research grant program funds research projects around the world for both multiple myeloma and amyloidosis.
Categories: Multiple Myeloma, Educational Programs , Support Groups
International Waldenstrom's Macroglobulinemia Foundation
3932D Swift Road
Sarasota, FL 34231
Local Phone: 941-927-4963 (Responds to calls in English only)
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) provides encouragement and support to people with Waldenstrom macroglobulinemia (WM) and offers information and education programs that address patient's concerns, and promotes and supports research leading to a cure. The IWMF offers many patient publications, including a New Patient Information Package (Info Pak). IWMF-Talk is an e-mail talklist for discussion of every aspect of WM (available in English, French, German, Spanish, Nordic Countries, U.K.). Telephone Lifeline Support provides telephone numbers of IWMF volunteers who will answer questions about their first-hand experience with specific treatment for WM. IWMF also provides telephone and e-mail network lists that connect patients and caregivers. IWMF provides funding to researchers studying a treatment or cure for Waldenstrom macrogloblinemia or related blood cancer. Information on the Web site is available in French, Spanish, and German.
Categories: Non-Hodgkin Lymphoma, Educational Programs , Support Groups
505 East 79th Street
New York, NY 10075
Free Line: 1-877-563-7468 (1-877-JOESHOU) (Responds to calls in English only)
Joe’s House is an online nationwide service that helps cancer patients and their families find lodging near treatment centers. Joe’s House offers over 2,000 lodging facilities, including individual homes, hospitality houses, other nonprofit housing such as Ronald McDonald Houses and Hope Lodges, apartments, hotels, hostels, and more. You may search on the Web site to locate lodging by selecting a state, then selecting a city or healthcare facility. Information on each lodging facility is available, including complete contact information, amenities, rates, reservation methods, and requirements.
Categories: Lodging & Travel
Kidney Cancer Association
Post Office Box 96503
Washington, DC 20090
Local Phone: 847-332-1051 (Responds to calls in English and Spanish)
Free Line: 1-800-850-9132 (Responds to calls in English and Spanish)
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. The KCA offers a variety of services: educating patients and families and helping those with kidney cancer cope with the disease, advancing medical research and providing education for physicians and nurses, and serving as an advocate on behalf of patients. Contact the Nurse Hotline to find answers to questions about the treatment of kidney cancer and referrals to physicians in the United States. The KCA Web site provides free publications, calendars for support groups and patient conferences, online forums and chat rooms, and videos and podcasts. KCA responds to calls in English and Spanish.
Categories: Kidney, Other Cancers, Advocacy, Health Professional Referrals, Support Groups
Leukemia and Lymphoma Society
Local Phone: 914-949-5213 (Responds to calls in English only)
Free Line: 1-800-955-4572 (Responds to calls in English and Spanish)
The Leukemia and Lymphoma Society (LLS) is dedicated to funding blood cancer research and providing education and services to patients and caregivers. Support services include in-person and online support groups and peer-to-peer support that links patients and their families with a trained volunteer who has experienced a similar situation. Numerous other resources include education programs, free educational materials, online support programs, and information about home-care services. You can contact LLS by phone, email or Live Chat. Callers to LLS who speak languages other than English may request the services of a language interpreter; medical interpretation services are available in 170 languages. LLS has chapter offices located throughout the United States and Canada.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, General Living Expenses, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
Leukemia and Lymphoma Society Co-Pay Assistance Program
Post Office Box 12268
Newport News, VA 23612
Free Line: 1-877-557-2672 (1-877-LLS-COPAY) (Responds to calls in English and Spanish)
The Leukemia and Lymphoma Society's (LLS) Co-Pay Assistance Program offers financial assistance to patients in meeting their private insurance or Medicare premiums, and co-pays for prescription medication and allowable treatment costs. Only certain blood cancer diagnoses are covered by this program and they are subject to change - check the Co-pay Web site for the latest information. Prescription insurance coverage is required to qualify for this program.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Health Insurance (includes co-payments), Medication (includes co-payments)
2201 E. Sixth St.
Austin, TX 78702 Free Line: 1-855-220-7777 (Responds to calls in English and Spanish)
LIVESTRONG helps anyone affected by cancer; patients, caregivers, family members, and friends. LIVESTRONG provides free, confidential support through education, referrals, and counseling services to help patients and their loved ones manage the physical, emotional, and practical effects of cancer. Call or visit the website to be connected with a LIVESTRONG navigator who can refer you to appropriate programs and resources. Support services include peer to peer matching, counseling, managing financial and insurance concerns, and locating local support groups.
Additional Services offered by LIVESTRONG: LIVESTRONG Fertility LIVESTRONG Fertility is dedicated to providing reproductive information and financial support to cancer patients and survivors whose medical treatments present the risk of infertility. The LIVESTRONG Fertility Discount Program offers assistance to men and women to help offset the costs of sperm banking or egg and embryo freezing. Fertility resources can also be found on their website by searching city, state and zip code. Services for Young Adults LIVESTRONG also has specialized services and resources for adolescents and young adults (15-40) cancer patients and survivors. These services include navigation services, survivorship care plans, and Critical Mass: the Young Adult Cancer Alliance. More information can be found in the link below.
Categories: Health Insurance (includes co-payments), Lodging & Travel, Medication (includes co-payments), Educational Programs
Living Beyond Breast Cancer
354 West Lancaster Avenue
Haverford, PA 19041
Local Phone: 484-708-1550 (Responds to calls in English only); 610-645-4567 (Responds to calls in English only)
Free Line: 1-888-753-5222 (1-888-753-LBBC) (Survivors' Helpline) (Responds to calls in English and Spanish)
Living Beyond Breast Cancer (LBBC) aims to empower all women affected by breast cancer to live as long as possible with the best quality of life. LBBC provides specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing the disease, and African American and Latina women. The LBBC Survivors’ Helpline is a national, toll-free telephone service staffed by trained volunteers affected by breast cancer. Helpline volunteers offer guidance, information, and hope. Spanish-speaking helpline volunteers are available.
LBBC publishes Insight (quarterly educational newsletter), provides interactive message boards, and offers comprehensive guides, brochures, and transcripts and audio recordings of conferences. LBBC also offers education programs and services to help health care professionals counsel women affected by breast cancer. The LBBC Web site is available in Spanish.
Categories: Breast, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
Look Good...Feel Better®
Free Line: 1-800-395-5665 (1-800-395-LOOK) (Responds to calls in English and Spanish)
Look Good...Feel Better® (LGFB) is a free national public service program that helps individuals with cancer look good, improve their self-esteem, and manage their treatment and recovery with greater confidence. LGFB offers advice to cope with the appearance-related side effects of treatment through group programs, a toll-free information and referral line, self-help kits, one-on-one consultations, and brochures. The LGFB Web site contains various make-over steps, hair help, and before and after photos. The program also has a self-help brochure for men who are seeking information on appearance-related side effects of cancer treatment. Translators for many other languages are available to respond to calls.
Categories: International, Medical Supplies, Wigs, Prostheses , Educational Programs
Look Good…Feel Better® for Teens
Free Line: 1-800-395-5665 (1-800-395-LOOK) (Responds to calls in English and Spanish)
Look Good…Feel Better® for Teens is a hospital-based public service program created to help girls and guys age 13 to 17 deal with the appearance, health, and social side effects of cancer treatment. The program offers on-site sessions in 16 cities. A 2bMe Web site was specifically developed for teens and provides the option to privately explore the different challenges caused by cancer on their own. The Web site is divided into four main areas: “About Face”, “Head Way”, “Health Esteem” and “Social Circles." Topics include skincare, nutrition advice and information on social issues relevant to teens.
Categories: Medical Supplies, Wigs, Prostheses , Educational Programs
Lung Cancer Alliance
888 16th Street, NW.
Washington, DC 20006
Local Phone: 202-463-2080 (Responds to calls in English only)
Free Line: 1-800-298-2436 (Lung Cancer Information Line) (Responds to calls in English and Spanish); 1-800-698-0931 (Clinical Trials Matching Service) (Responds to calls in English and Spanish)
The Lung Cancer Alliance (LCA) is dedicated to providing support and advocacy for people living with or at risk for lung cancer. LCA programs include a Lung Cancer Information Line which provides support, information, and referrals for lung cancer patients, survivors, and their family and friends. The Phone Buddy Program is a peer-to-peer support program that matches survivors or their family members/caregivers with patients or caregivers who have gone through similar medical and social situations. LungLoveLink is a new online support community for people living with lung cancer as well as family members and caregivers. The Clinical Trials Matching Service is designed to help lung cancer patients and their families identify possible clinical trials. LCA also sponsors Lung Cancer Awareness Month, a national education and advocacy campaign; the quarterly newsletter Lung Cancer Alliance Times; and LCA Advocacy Action, where advocates can receive alerts to participate in or respond to important lung cancer issues.
Categories: Lung, Advocacy, Educational Programs , Peer/Buddy Programs
The Lustgarten Foundation
1111 Stewart Avenue
Bethpage, NY 11714 Local Phone: 516-803-2304 (Responds to calls in English only) Free Line: 1-866-789-1000 (Responds to calls in English only); 1-800-535-1867 (Clinical Trials Matching and Referral Service) (Responds to calls in English only)
The Lustgarten Foundation is dedicated to advancing the scientific and medical research related to the diagnosis, treatment, cure, and prevention of pancreatic cancer. The Foundation's Web site has an ‘Interview with an Expert' series that provides in-depth information from leading experts in the field of pancreatic cancer. A Pancreatic Cancer Profiler Tool is also available on the Web site and requires entering in diagnosis information, test results, and medical history, and then creates a free Treatment Options Report that includes descriptions of treatments, side effects, and questions to ask your doctor. A free patient handbook, "Understanding Pancreatic Cancer: A Guide for Patients and Caregivers," is available in hard copy or electronically. The Lustgarten Foundation works with EmergingMed to provide a free and confidential service to locate a pancreatic cancer clinical trial that matches each person’s situation. The Web site also has links to organizations that provide publications, financial assistance, and support services.
Categories: Pancreas, Educational Programs , Health Professional Referrals
Luzca Bien…Siéntase Mejor® (Look Good...Feel Better®)
Free Line: 1-800-395-5665 (1-800-395-LOOK) (Responds to calls in English and Spanish)
Luzca Bien…Siéntase Mejor® (Look Good...Feel Better®) is a free, bilingual group program available throughout the United States either as a dedicated Spanish language workshop or as a bilingual patient workshop. The program helps women offset appearance-related changes from cancer treatment. It is available in 19 locations: Albuquerque, Austin, Brownsville (TX), Chicago, Dallas, Denver, El Paso, Fresno/Visalia (CA), Houston, Los Angeles, Miami, New York City, Philadelphia, Phoenix, Orlando, San Antonio, San Diego, San Francisco, and Washington, D.C. Spanish-language materials are available nationwide upon request.
Categories: Medical Supplies, Wigs, Prostheses , Educational Programs
Lymphoma Research Foundation
New York, NY 10006
Local Phone: 212-349-2910
Free Line: 1-800-500-9976
The Lymphoma Research Foundation (LRF) is a voluntary health organization devoted to funding lymphoma research and providing patients and health care professionals with information on the disease. LRF’s support programs include the Lymphoma Support Network, a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences. Trained staff members are available to answer questions, offer individual support, and search for clinical trials on the Lymphoma Helpline and Clinical Trials Information Service. LRF’s Patient Aid Grant program provides limited assistance to lymphoma patients currently undergoing treatment for help with medical bills, transportation, temporary lodging, and childcare.
The research goals of LRF are focused on engaging and educating junior researchers and bringing together investigators focusing on specific diseases or other focal points. The Foundation has launched several special research programs, including an initiative to study mantle cell lymphoma, a type of non-Hodgkin lymphoma that is especially challenging to treat. The Foundation advocates on behalf of the lymphoma community to increase federal funding for lymphoma research and education, and to ensure access to high-quality cancer care for every patient.
Categories: Hodgkin Lymphoma, Non-Hodgkin Lymphoma, General Living Expenses, Lodging & Travel, Medical Supplies, Wigs, Prostheses , Advocacy, Educational Programs , Peer/Buddy Programs
Lynch Syndrome International
Post Office Box 19
Madison, CT 06443
Local Phone: 203-779-5034 (Responds to calls in English only)
Lynch Syndrome International (LSI) provides support for individuals afflicted with Lynch syndrome (a hereditary disorder that places a person at higher risk of developing colorectal cancer, endometrial cancer, and various other types of aggressive cancers), increases public awareness of the syndrome, educates members of the general public and health care professionals, and provides support for Lynch syndrome research endeavors.
LSI is an all volunteer organization founded and governed by Lynch syndrome survivors, their families, and health care professionals who specialize in Lynch syndrome. The LSI Web site has comprehensive information on diagnosis, treatment, and follow-up issues for people with Lynch Syndrome.
Categories: Colorectal, Other Cancers, Advocacy, Peer/Buddy Programs
Medicaid (Medical Assistance)
7500 Security Boulevard
Baltimore, MD 21244 Free Line: 1-877-267-2323 (Responds to calls in English only)
Medicaid (Medical Assistance) is a jointly funded, Federal-State health insurance program for low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Although the Federal Government establishes general guidelines for the program, Medicaid is a state-administered program, and each state sets its own guidelines regarding eligibility and services. Information about coverage is available from local state welfare offices, state health departments, state social service agencies, or the state Medicaid office. The Vaccines for Children Program (VCP) provides immunization services for children 18 and under who are Medicaid eligible, uninsured, underinsured, and receiving childhood immunizations through a Federally Qualified Health Center or Rural Health Clinic, or are Native American or Alaska Native. Spanish-speaking staff are available in some offices.
Categories: Childhood, Health Insurance (includes co-payments), Medication (includes co-payments)
7500 Security Boulevard
Baltimore, MD 21244 Free Line: 1-800-633-4227 (1-800-MEDICARE) (Responds to calls in English and Spanish) TTY Line: 1-877-486-2048
Medicare is a Federal Government health insurance program that is administered by the Centers for Medicare & Medicaid Services (CMS). Medicare is health insurance for people age 65 or older, under age 65 with certain disabilities, and people of any age with End-Stage Renal Disease. Medicare is divided into four parts - Parts A, B, C, and D. Part A is Hospital Insurance and helps pay for inpatient hospital care and care at nursing facilities, hospice, and home health care services. Part B is Medical Insurance and covers doctor services, outpatient care, and some preventive services. Part C is the Medicare Advantage Plans, which allow you to get Medicare benefits through private companies approved by and under contract with Medicare (includes Part A, Part B, and usually other benefits Medicare doesn't cover). Most plans also provide prescription drug coverage. Part D is Prescription Drug Coverage and is run by private companies approved by Medicare.
Medicare reimburses patient care costs for its beneficiaries who participate in clinical trials designed to diagnose or treat cancer. To receive information on eligibility, explanations of coverage, and related publications, call Medicare or visit their Web site. Some publications are available in Spanish.
Categories: Health Insurance (includes co-payments), Medication (includes co-payments)
Melanoma International Foundation
250 Mapleflower Road
Glenmoore, PA 19343
Local Phone: 610-942-3432 (Philadelphia Area) (Responds to calls in English only)
Free Line: 1-866-463-6663 (Outside Philadelphia Region) (Responds to calls in English only)
The Melanoma International Foundation (MIF) creates and supports melanoma programs for the prevention, early detection, and treatment of melanoma. Educating patients about clinical trials as well as providing funds for patient travel and lodging for clinical trials and second opinions are included in MIF’s patient services. MIF provides a hotline to help melanoma patients and their families understand their pathology, what clinical trials are available, and how to get the best palliative care. MIF also provides early detection education and teaches skin self-examination and sun safety. An online forum is available to provide community support for people with melanoma and their caregivers. MIF’s educational programs range from educating new parents through high school students. MIF also offers webinars and workplace education programs to bring melanoma awareness and education to corporations across the country.
Categories: Melanoma, Other Cancers, Lodging & Travel, Educational Programs , Support Groups
Mesothelioma Applied Research Foundation
1317 King Street
Alexandria, VA 22314
Local Phone: 703-879-3820 (Responds to calls in English only)
Free Line: 1-877-363-6376 (1-877-END-MESO) (Responds to calls in English only)
The Mesothelioma Applied Research Foundation is a nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating mesothelioma. Services provided include a dedicated nurse practitioner who works with patients to provide current information on mesothelioma and to connect patients with mesothelioma treatment specialists. The practitioner also offers emotional support and access to community forums available through their Web site. An annual symposium offers patients, family members, and caretakers the opportunity to learn from and interact directly with the world's top experts on mesothelioma. Financial aid for medical travel is available to newly-diagnosed patients to consult with a mesothelioma expert. Contact the Mesothelioma Applied Research Foundation to obtain a free book titled "100 Questions & Answers About Mesothelioma.” The Mesothelioma Applied Research Foundation also funds research projects around the world.
Categories: Mesothelioma, Lodging & Travel, Advocacy, Educational Programs , Health Professional Referrals, Support Groups
Multiple Myeloma Research Foundation
383 Main Avenue
Norwalk, CT 06851
Local Phone: 203-229-0464 (Responds to calls in English only)
The Multiple Myeloma Research Foundation (MMRF) aggressively funds research that will accelerate the development of multiple myeloma treatments and extend the lives of patients and lead to a cure. MMRF provides information for newly diagnosed patients, patients starting treatment, and relapsed/refractory patients. MMRF has two publications, Multiple Myeloma: Disease Overview and Multiple Myeloma: Treatment Overview, available free for download from their Web site. MMRF offers a Myeloma Mentors program that provides trained and certified staff who share their experiences with multiple myeloma with patients, physicians, industry, and others in the myeloma community. The Multiple Myeloma Research Consortium (MMRC) is the sister organization to MMRF and partners with pharmaceutical and academic sponsors to facilitate clinical trials of the most promising investigational compounds and new combination treatment approaches for myeloma.
Categories: Multiple Myeloma, Health Professional Referrals, Peer/Buddy Programs
MyLifeLine.org Cancer Foundation
55 Madison St., Suite 750
Denver, CO 80206
Local Phone: 720-883-8715
MyLifeLine.org is a nonprofit organization where cancer patients, survivors and caregivers can create free, customized websites that allow friends and family to be informed and involved in their cancer journey. A patient, family member or friend creates the site and invites guests to visit and participate in the online community. Patients can share their cancer experience and receive support via messages and photos.
Categories: Other Cancers, Peer/Buddy Programs , Support Groups
Free Line: 1-866-708-3378 (1-866-708-FERT) (FERTLine)
MyOncofertility.org is a Web site that provides information on the potential effect of cancer (and other serious diseases) and treatment on fertility, options for preserving fertility, and resources for discussing these issues with a doctor. The Web site features printable documents on topics such as female and male fertility options, and questions to ask your doctor prior to starting treatment. Many survivor videos are available for viewing on the site. Survivors share their experiences, decision making, and advice. Expert videos provide information on basic fertility information, common questions, and information on female, male, and childhood fertility procedures and treatment. The Web site has a physician finder resource to search for a physician who can assist with fertility preservation options. Patients can also call the toll-free FERTLine to talk to a Registered Nurse Patient Navigator who can help patients wade through the difficult decision process of fertility preservation. This Patient Navigator can also help make referrals to outside centers. The Web site is also available in Spanish.
Categories: Childhood, Health Professional Referrals
National Association of Insurance Commissioners
2301 McGee Street
Kansas City, MO 64108
Local Phone: 816-783-8500 (Help Desk) (Responds to calls in English only)
Free Line: 1-866-470-6242 (1-866-470-NAIC) (Responds to calls in English and Spanish)
The National Association of Insurance Commissioners (NAIC) is the organization of insurance regulators from the 50 states, the District of Columbia, and the 5 U.S. territories. A state insurance regulator's primary responsibilities are to educate the public about insurance and protect the interests of insurance consumers, and the NAIC helps regulators fulfill that obligation.
NAIC assists people who do not have insurance and also fields insurance complaints. NAIC has a Consumer Information Source (CIS) tool on its Web site that provides information on insurance companies that you can review before purchasing insurance. You can obtain information such as closed insurance complaints, licensing information, and key financial data. The Internet address for the CIS tool is listed in the Additional Resources section. Through its award-winning Insure U consumer-education program, the NAIC helps consumers evaluate their options and get smart about insurance. The Insure U Web site provides basic information on the major types of insurance: life, health, auto, and homeowners/renter’s insurance.
Categories: Health Insurance (includes co-payments)
National Bone Marrow Transplant Link
20411 West 12 Mile Road
Southfield, MI 48076
Local Phone: 248-358-1886 (Responds to calls in English only)
Free Line: 1-800-546-5268 (1-800-LINK-BMT) (Responds to calls in English only)
The National Bone Marrow Transplant Link (nbmtLink) is a nonprofit organization specifically serving stem cell transplant patients, their caregivers, families, and health professionals. The nbmtLink provides information and support services, including a volunteer peer support program, resource referrals for patients and health professionals, and educational guides, videos, and Webcasts. The free nbmtLINK Online Library contains hundreds of journal articles, booklets, and reference materials, as well as comprehensive links to additional online information. Information on how to become a donor is also available.
Categories: Hodgkin Lymphoma, Leukemia, Multiple Myeloma, Non-Hodgkin Lymphoma, Other Cancers, Educational Programs , Peer/Buddy Programs , Support Groups
National Brain Tumor Society
55 Chapel Street, Suite 200
Newton, MA 02458
Local Phone: 617-924-9997
The National Brain Tumor Society (NBTS) is the largest nonprofit organization dedicated to the brain tumor community in the United States. They are committed to improving the lives of all those affected by brain tumors. NBTS supports research initiatives which advance the understanding of brain tumors in order to find new and more effective treatments. NBTS provides free publications, such as "Frankly Speaking about Cancer: Brain Tumors," a resource guide that provides information on brain tumors in an easy-to-read format. NBTS also has information on their website to help brain tumor survivors and their families connect with support programs and organizations.
Categories: Brain, Advocacy, Support Groups
National Breast and Cervical Cancer Early Detection Program Centers for Disease Control and Prevention, Division of Cancer Prevention and Control
Mail Stop K-64
4770 Buford Highway, NE.
Atlanta, GA 30341
Free Line: 1-800-232-4636 (1-800-CDC-INFO) (Responds to calls in English and Spanish)
The Centers for Disease Control and Prevention's National Breast and Cervical Cancer Early Detection Program (NBCCEDP) provides low-income, uninsured, and underserved women access to breast and cervical cancer screening and diagnostic services. Screening support is provided in all 50 states, the District of Columbia, 5 U.S. territories, and 11 American Indian/Alaska Native tribes or tribal organizations. Services include clinical breast exams, mammograms, Pap tests, HPV tests, pelvic exams, diagnostic testing if results are abnormal, and referrals to treatment. In 2000, Congress passed the Breast and Cervical Cancer Prevention and Treatment Act, which enables women in the NBCCEDP program to access treatment through Medicaid.
Categories: Health Insurance (includes co-payments), Health Professional Referrals
National Breast Cancer Coalition
1101 17th Street, NW.
Washington, DC 20036
Local Phone: 202-296-7477 (Responds to calls in English only)
Free Line: 1-800-622-2838 (Responds to calls in English only)
The National Breast Cancer Coalition (NBCC) is the nation's largest breast cancer advocacy group. NBCC's sister organization, the National Breast Cancer Coalition Fund (NBCCF), empowers and trains NBCC members to take a leadership role beside legislative, scientific, and clinical decisionmakers. Once trained, these advocates represent NBCC as they influence public policies that impact breast cancer research, diagnosis, and treatment. NBCC is developing a patient-focused Web site that provides information on research, screening and risk, diagnosis and testing, treatment options, and quality of life. The NBCCF booklet, How to Get Good Care for Breast Cancer, contains essential messages about quality care and focuses on empowering patients to ask questions and learn about evidence-based care.
Categories: Breast, Advocacy
National Cervical Cancer Coalition
6520 Platt Avenue
West Hills, CA 91307
Local Phone: 818-992-4242 (Responds to calls in English only)
Free Line: 1-800-685-5531 (Responds to calls in English only)
The National Cervical Cancer Coalition (NCCC) is a coalition of women, family members, caregivers, health care professionals, and cervical cancer organizations and associations focused on providing a safe and educational place for women who have or have had cervical cancer and HPV. Services include a phone/e-mail pen pal program, toll-free hotline, parents-educating-parents program, NCCC newsletters, NCCC annual survivor/clinical awareness conferences, and speaker panels. NCCC also serves as a clearinghouse for free brochures and pamphlets about cervical cancer, cancer care issues, and cervical disease. Some pamphlets are available in Spanish.
Categories: Cervical, Advocacy, Educational Programs , Peer/Buddy Programs
The National Children's Cancer Society
One South Memorial Drive
St. Louis, MO 63102
Local Phone: 314-241-1600 (General) (Responds to calls in English only)
Free Line: 1-800-532-6459 (1-800-5-FAMILY) (Responds to calls in English only)
The National Children’s Cancer Society (NCCS) strives to improve the quality of life for childhood cancer patients and their families worldwide. The NCCS provides support through four programs: Pediatric Oncology Program (offers direct financial support), Care to Share Cancer Connection Program (Internet support network for families), Global Outreach Program (distributes donated cancer-related pharmaceuticals), and Beyond The Cure (helps childhood cancer survivors integrate the cancer experience into their new lives). The Pediatric Oncology Program financial support includes meals during treatment, transportation to and from treatment, long distance telephone cards, lodging during treatment, health insurance premiums, and medical expenses not covered by insurance. The application for financial assistance is available in both English and Spanish. In addition, NCCS offers free publications for order or download from their Web site, as well as access to helpful videos and educational telephone conferences.
Categories: Childhood, General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Scholarships & Camps, Support Groups
National Coalition for Cancer Survivorship
1010 Wayne Avenue
Silver Spring, MD 20910
Local Phone: 301-650-9127 (Responds to calls in English only)
Free Line: 1-888-650-9127 (Responds to calls in English only); 1-877-622-7937 (1-877-NCCS-YES) (To Order Cancer Survival Toolbox®) (Responds to calls in English only)
The National Coalition for Cancer Survivorship (NCCS) is a survivor-led cancer advocacy organization. NCCS’s primary goal is to advocate for quality cancer care for all Americans and empower cancer survivors. Resources provided include the Cancer Survival Toolbox® (free, self-learning audio program), NCCS publications, Surviving with Confidence program (dispels misconceptions about chemotherapy), Cancer Care Planning, and Journey Forward (program that promotes clear steps for care and monitoring after active cancer treatment). NCCS also provides a Resource Guide, a database of organizations that can be searched based on cancer type, treatment issues, side effects, cancer-related information (e.g., long-term survival clinics), and state.
Categories: Advocacy, Educational Programs
National Foundation for Credit Counseling
2000 M St. NW
Suite 505 Washington, DC 20036 Local Phone: 202-677-4300 Free Line: 1-800-388-2227 (English only) 1-800-682-9832 (Spanish only)
The National Foundation for Credit Counseling (NFCC) is the nation's largest financial counseling organization and its network of member agencies includes community-based organizations in all 50 states and Puerto Rico. NFCC member agencies provide clients with comprehensive money management services based on their individual needs. Services include counseling on credit and debt matters, housing, and bankruptcy. The website offers a variety of consumer tools.
To find a local member agency, call the toll-free number or visit the link below: https://www.nfcc.org/agency-locator/
Categories: Counseling, Educational Programs
National Hospice and Palliative Care Organization
1731 King Street
Alexandria, VA 22314
Local Phone: 703-837-1500 (NHPCO Office) (Responds to calls in English only)
Free Line: 1-800-658-8898 (Caring Connections Helpline) (Responds to calls in English and Spanish); 1-877-658-8896 (Responds to calls in Spanish only)
The National Hospice and Palliative Care Organization (NHPCO) is a membership organization representing programs and professionals that provide hospice and palliative care in the United States. NHPCO's mission is to lead and mobilize social change for improved care at the end-of-life. NHPCO offers publications, information about how to find a hospice, and information about the financial aspects of hospice. On the NHPCO Web site you are able to search for hospice/palliative care programs in the United States. Caring Connections is a national consumer and community engagement program of NHPCO to improve care at the end-of-life. Caring Connections provides a toll-free number, Web site, and a wide range of free materials about end-of-life care (such as hospice and palliative care information, advance care planning, caregiving). Information on the Caring Connections Web site is provided on Planning Ahead, Caring for Someone, Living with an Illness, and Grieving a Loss. Some Spanish-language publications are available, and staff are able to answer calls in Spanish.
Categories: Advocacy, Educational Programs , Health Professional Referrals
National Lymphedema Network
116 New Montgomery Street
San Francisco, CA 94105
Local Phone: 415-908-3681 (Responds to calls in English only)
Free Line: 1-800-541-3259 (Responds to calls in English only)
The National Lymphedema Network (NLN) provides education and guidance to lymphedema patients, health care professionals, and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN offers a toll-free support hotline and provides referrals to lymphedema treatment centers, health care professionals, training programs, and support groups. NLN produces a quarterly newsletter (LymphLink) with information about medical and scientific developments, and educational materials for health care professionals and patients. The NLN Marilyn Westbrook Garment Fund provides funds for lymphedema appliances, compression sleeves/stockings, and alternative garments. NLN’s Netpal/Penpal program provides a forum for people suffering with primary lymphedema, parents of childhood lymphedema patients, and people with lower extremity and upper/breast cancer-related lymphedema. The forums allow people to share their experiences and talk with others in similar situations. Some Spanish-language materials are available.
Categories: Childhood, Medical Supplies, Wigs, Prostheses , Treatment, Health Professional Referrals, Peer/Buddy Programs , Support Groups
National Ovarian Cancer Coalition
2501 Oak Lawn Avenue
Dallas, TX 75219
Local Phone: 214-273-4200 (Responds to calls in English only)
Free Line: 1-888-682-7426 (1-888-OVARIAN) (Responds to calls in English only)
The National Ovarian Cancer Coalition (NOCC) is committed to raising awareness of ovarian cancer in communities across the country and providing education and support for women with ovarian cancer and their families. NOCC has a toll-free number for information, referral, support, and education about ovarian cancer. NOCC also offers support groups, a national newsletter, and educational materials on issues such as symptoms, risk factors, and treatment. Committed volunteers continue to build a network of NOCC Chapters throughout the country to advance the ovarian cancer awareness movement in local communities.
Categories: Ovarian, Advocacy, Educational Programs , Peer/Buddy Programs
National Patient Travel Center
Free Line: 1-800-296-1217 (Patients) (Responds to calls in English only)
The National Patient Travel Center (NPTC) provides information about all forms of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network. NPTC has information on the following types of assistance which may be available for patients and an escort:
-charitable airline ticket programs -volunteer pilot organizations -air ambulance coordination -long distance ground transportation for ambulatory patients traveling for treatment (typical distance is 70-250 miles one-way)
Categories: Lodging & Travel
Post Office Box 219
Gloucester, MA 01931
Local Phone: 978-281-6666
Free Line: 1-800-503-6897 (Responds to calls in English only)
NeedyMeds is an online information resource on programs that provide assistance to people who are unable to afford their medications and health care costs. NeedyMeds has information on patient assistance programs supported by various pharmaceutical companies. These programs make drugs available for free or at low cost to patients who are uninsured or underinsured. Co-pay programs are also available for some drugs. Information on other assistance programs, such as discount drug cards, disease-based assistance (programs that help with costs associated with specific diseases), and free or low-cost clinics is also provided on the website.
The toll-free helpline (open from 9 am to 4 pm, ET) assists those who do not have access to a computer or who might need further assistance.
Categories: Medication (includes co-payments), Health Professional Referrals
The Oral Cancer Foundation
3419 Via Lido
Newport Beach, CA 92663
Local Phone: 949-646-8000 (Responds to calls in English only)
The Oral Cancer Foundation (OCF) is a nonprofit organization that provides information, patient support, sponsorship of research, and advocacy related to oral cancer. A major focus of OCF is the promotion of an annual oral cancer screening and outreach to the dental and medical communities to provide this service as a matter of routine practice. OCF provides a free online Patient/Survivor Forum that is open to the public and is a message board and chat room area where you may ask questions, share ideas and opinions, and learn about other people’s experiences dealing with oral cancer. A comprehensive resource list that links to other pertinent oral cancer data on the Web and elsewhere is also available.
Categories: Oral, Advocacy, Educational Programs , Peer/Buddy Programs
Ovarian Cancer National Alliance
910 17th Street, NW.
Washington, DC 20006
Local Phone: 202-331-1332 (Responds to calls in English only)
Free Line: 1-866-399-6262 (Responds to calls in English only); 1-800-535-1682 (OCNA Clinical Trials Matching Service) (Responds to calls in English and Spanish)
The Ovarian Cancer National Alliance (OCNA) advances the interests of women with ovarian cancer by advocating for increased federal funding for ovarian cancer research; increasing awareness that early recognition of symptoms is the best way to save lives; and educating medical and other health care professionals about ovarian cancer diagnosis and the need to provide referrals to gynecologic oncologists. OCNA has a “Survivors Teaching Students: Saving Women’s Lives” program that enhances medical, nursing, and physician assistant students’ understanding of ovarian cancer symptoms and risk factors. The Ovarian Cancer National Alliance Clinical Trials Matching Service provides information on current clinical trials in the United States and Canada. Women can customize their searches based on a range of criteria that includes the specific ovarian cancer type, stage, treatment history, and place where she can enroll. A Clinical Trial Specialist is assigned to each caller to guide her through her confidential search.
Categories: Ovarian, Advocacy, Educational Programs
Pancreatic Cancer Action Network
1500 Rosecrans Avenue
Manhattan Beach, CA 90266
Local Phone: 310-725-0025 (Responds to calls in English and Spanish)
Free Line: 1-877-272-6226 (Responds to calls in English and Spanish)
The Pancreatic Cancer Action Network is a nationwide network of people dedicated to advancing research, supporting patients, and creating hope for those affected by pancreatic cancer. The Patient and Liaison Services (PALS) program helps patients and families who are facing pancreatic cancer by providing information, resources, and educational materials. The PALS program also provides educational materials and services to health professionals and researchers. All services and materials are free. The Pancreatic Cancer Action Network is committed to advancing pancreatic cancer research through research grants and advocacy efforts to increase spending for pancreatic cancer research. Information on Web site is also available in Spanish.
Categories: Pancreas, Advocacy, Peer/Buddy Programs
312 Fountain Avenue
Pacific Grove, CA 93950 Local Phone: 831-658-0600 (Responds to calls in English only) Free Line: 1-800-433-0464 (Speak with a survivor - responds to calls in English only); 1-800-525-3777 (Speak with a counselor - responds to calls in English only)
Pancreatica.org serves as a worldwide gathering point on the Internet for the latest news and information in regard to clinical trials and other medical care in the treatment of pancreatic cancer. Their Web site aims to present impartial knowledge about pancreatic cancer so that patients can sort through large amounts of information efficiently and get a sense of the range of existing treatment options.
Categories: Pancreas, Advocacy
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
Free Line: 1-800-532-5274 (Responds to calls in English only)
Patient Advocate Foundation (PAF) provides professional case management services to help patients, caregivers or providers who face debilitating, chronic or life-threatening illnesses resolve healthcare issues. PAF case managers serve as liaisons and safeguard patients employing effective mediation to ensure access to care, maintenance of employment, and preservation of financial stability.
Resources that address topics such as finding financial assistance, access to insurance, job retention and more are available on their website and as hard copy publications. PAF has a Scholarship for Survivors program and awards college scholarships to individuals under the age of 25 that are or have been diagnosed with cancer or a critical or life-threatening disease. Additional Resources: Frequently Asked Questions http://www.patientadvocate.org/help.php?p=480 PAF Publications http://www.patientadvocate.org/resources.php?p=749 Patient Resources http://www.patientadvocate.org/resources.php Scholarships for Survivors http://www.patientadvocate.org/index.php?p=69
Categories: Health Insurance (includes co-payments), Scholarships & Camps, Legal Issues
Prevent Cancer Foundation
1600 Duke Street
Alexandria, VA 22314
Local Phone: 703-836-4412 (Responds to calls in English only)
Free Line: 1-800-227-2732 (Responds to calls in English only)
The Prevent Cancer Foundation funds research on cancer prevention, educates the public about how to prevent cancer, and reaches out to communities across the country with resources and events, and partners with other organizations. The Foundation focuses its energies and resources on those cancers—breast, cervical, colorectal, lung, oral, prostate, skin, testicular—that can be prevented through lifestyle changes or detected and treated in their early stages. The Foundation has several community outreach programs and exhibits available for community events. The Prevent Cancer Foundation has many childhood initiatives and educational programs targeting children and adolescents/young adults.
Categories: Childhood, Educational Programs
Prostate Cancer Foundation
1250 Fourth Street
Santa Monica, CA 90401
Local Phone: 310-570-4700 (Responds to calls in English only)
Free Line: 1-800-757-2873 (1-800-757-CURE) (Responds to calls in English only)
The Prostate Cancer Foundation (PCF) is a leading source of support for prostate cancer research to discover better treatments and a cure for prostate cancer. PCF connects patients, loved ones, care providers, and scientists to critical updates, the latest developments, best practices, and treatment news. PCF produces comprehensive guides (e.g., "Report to the Nation on Prostate Cancer: A Guide for Men and Their Families") available for download or order on the PCF Web site. The Foundation has funded more than 1,500 research projects at nearly 200 institutions worldwide. PCF also advocates for greater awareness of prostate cancer and increased government spending on prostate cancer.
Categories: Prostate, Advocacy, Support Groups
R.A. Bloch Cancer Foundation, Inc.
One H&R Block Way
Kansas City, MO 64105
Local Phone: 816-854-5050 (Responds to calls in English only)
Free Line: 1-800-433-0464 (Responds to calls in English only)
The R.A. Bloch Cancer Foundation matches newly diagnosed cancer patients with trained, home-based volunteers who have been treated for the same type of cancer. They also distribute informational materials, including a list of institutions that provide multidisciplinary second opinions.
Categories: Health Professional Referrals, Peer/Buddy Programs
Ronald McDonald House Charities®
One Kroc Drive
Oak Brook, IL 60523
Local Phone: 630-623-7048 (Responds to calls in English only)
The three core programs of Ronald McDonald House Charities® (RMHC) are the Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile. Ronald McDonald Houses are places where out-of-town families can stay while their children are being treated for a serious illness. Families with childhood patients either stay at no cost or are asked to make a donation of up to $25 per day, depending on the house. The Ronald McDonald Family Room program provides a room located just steps from neonatal or pediatric intensive care units. Families of critically ill children can use the Ronald McDonald Family Room to rest, take showers, grab a bite to eat, and even do laundry. Through relationships with local health care providers, the Ronald McDonald Care Mobile program brings cost-effective medical, dental, and health education services directly to underserved children in both rural and urban areas around the world. All services are provided in a state-of-the-art vehicle built specifically for delivering pediatric health care services. RMHC also offers scholarships to students in financial need who have demonstrated academic achievement, leadership, and community involvement. Scholarships are for students in the United States living in areas where there are participating local Chapters.
Categories: Childhood, International, Lodging & Travel, Scholarships & Camps
The Salvation Army International Headquarters
101 Queen Victoria Street
Local Phone: 020-7332-0101 (National); 44-20-7332-0101 (International)
The Salvation Army International Headquarters offers a wide variety of services worldwide, including addiction rehabilitation programs, health services, social work, and emergency response to natural and man-made disasters. A world map is featured on the organization's Web site that allows you to click on a country to obtain contact information.
The Salvation Army National Headquarters
Post Office Box 269
615 Slaters Lane Alexandria, VA 22313
The Salvation Army fulfills its mission through community and fellowship (youth camps, Kroc centers, music), rebuilding lives (missing persons, disaster relief, prisoner rehabilitation, drug and alcohol rehabilitation, fighting human trafficking), and providing comfort and support (Christmas charity, elderly services, and loneliness). You can enter your ZIP Code on their Web site to get a list of Salvation Army locations nearest to you in the United States.
Categories: General Living Expenses, Lodging & Travel, Scholarships & Camps
775 East Blithedale
Mill Valley, CA 94941
Local Phone: 415-381-7236 (Responds to calls in English only)
The Sarcoma Alliance strives to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education, and support. Hand in Hand: The Suzanne R. Leider Memorial Assistance Fund was created to support sarcoma patients in finding the treatment they need. Hand in Hand offers financial assistance for second opinion consultations by reimbursing expenses related to travel, phone bills, costs of the evaluation, and related expenses. The grant maximum is $500.00. The Sarcoma Alliance Peer-to-Peer Network facilitates positive relationships between individuals affected by sarcoma so that they may find emotional support, encouragement, and information.
Categories: Other Cancers, General Living Expenses, Lodging & Travel, Treatment, Health Professional Referrals, Peer/Buddy Programs
1086 Teaneck Road, Suite 3A
Teaneck, NJ 07666
Local Phone: 201-833-2341
Free Line: 1-866-474-2774
Sharsheret, Hebrew for “chain”, is a national organization which supports young Jewish woman and families facing breast and ovarian cancer. They offer a peer support network that connects women newly diagnosed or at high risk of developing breast or ovarian cancer with others who share similar diagnoses and experiences. They also provide support and education programs addressing advanced breast cancer, genetics, parenting, cosmetic side effects of treatment as well as programs for caregivers and those facing ovarian cancer. Genetic counselors are available to discuss family history, concerns about cancer risk and the implications of genetic counseling. Sharsheret’s programs are open to all women and men.
Categories: Breast, Educational Programs , Peer/Buddy Programs , Support Groups
Sisters Network®, Inc.
2922 Rosedale Street
Houston, TX 77004
Local Phone: 713-781-0255 (Responds to calls in English only)
Free Line: 1-866-781-1808 (Responds to calls in English only)
Sisters Network® Inc. (SNI) is a national African American breast cancer survivorship organization that addresses the breast health needs of African American women through its affiliate chapters and partnerships with existing service providers. Sisters Network has a breast cancer assistance program (B-CAP) that provides assistance to women facing financial challenges after diagnosis. The program provides financial assistance for mammograms, copays, office visits, prescriptions, and medical-related lodging and transportation. An application form to apply for assistance may be obtained by calling or sending in a request via e-mail.
Categories: Breast, Health Insurance (includes co-payments), Lodging & Travel, Medication (includes co-payments), Screening, Educational Programs
Skin Cancer Foundation
149 Madison Avenue
New York, NY 10016
Local Phone: 212-725-5176 (Responds to calls in English and Spanish)
Free Line: 1-800-754-6490 (1-800-SKIN-490) (Responds to calls in English and Spanish)
The Skin Cancer Foundation (SCF) is dedicated to reducing the incidence of skin cancer through a combination of research, public education, and awareness. The Foundation has skin cancer information on its Web site and educational materials (brochures, posters, and books) that provide information on all forms of skin cancer, sun protection strategies, skin cancer prevention, and self-examination. In addition, SCF offers physician education and training programs, supports research into new diagnostic techniques and therapies, and promotes public education programs abroad. Publications are available in English, Spanish, French, German, and Italian.
Categories: Melanoma, Other Cancers, Skin Cancer (Nonmelanoma), Educational Programs , Health Professional Referrals
Social Security Administration
Windsor Park Building
6401 Security Boulevard Baltimore, MD 21235 Free Line: 1-800-772-1213 (Responds to calls in English and Spanish) TTY Line: 1-800-325-0778
The Social Security Administration (SSA) manages the Social Security and Supplemental Security Income (SSI) programs. Social Security provides a monthly income for eligible retired persons, surviving spouses and family members, and the disabled. SSI supplements Social Security payments for aged, blind, and disabled people with little or no income. It provides cash to meet basic needs for food, clothing, and shelter. Information on eligibility, coverage, and how to apply for benefits and file a claim is available from SSA. The SSA has a new Compassionate Allowances initiative that allows Social Security to target the most obviously disabled individuals for allowances based on objective medical information that can be obtained quickly. Information on the initiative and a list of qualifying conditions are available at the Web site located in the Additional Resources section below. Information on the SSA Web site is available in Spanish and in many other languages.
Categories: General Living Expenses
Starlight™ Children's Foundation
5757 Wilshire Boulevard
Los Angeles, CA 90036
Local Phone: 310-479-1212 (Responds to calls in English and Spanish)
Free Line: 1-800-315-2580 (Responds to calls in English and Spanish)
Starlight™ Children's Foundation is a nonprofit organization dedicated to helping seriously ill children and their families cope with their pain, fear, and isolation through entertainment, education, and family activities. Starlight builds playrooms and teen lounges in hospitals, and provides PC Pals and Fun Centers for kids to play games, e-mail, and chat with friends. Entertainers and parties are provided for childhood patients in the hospital. Starbright World is an online social network where teens (ages 13 to 20) who have serious medical conditions, and siblings of seriously ill teens, can connect with each other via moderated chat rooms, games, bulletin boards, videos, and more. Chapters are located in many U.S. states and in other countries.
Categories: Childhood, Educational Programs , Peer/Buddy Programs , Support Groups
State Health Insurance Assistance Program
Centers for Medicare & Medicaid Services
7500 Security Boulevard Baltimore, MD 21244
The State Health Insurance Assistance Program (SHIP) is a state program funded by the Federal government to provide information, referrals, and counseling to Medicare recipients and their families/caregivers. Specifically, SHIP counselors provide information on Medigap policies, long-term care insurance, Medicare health plan choices, Medicare rights and protections, and assistance with filing an appeal. The programs in each state often have different names but they all have the same purpose. Services may be received on the telephone or in face-to-face counseling sessions.
SHIP counselors are available in every state and in several territories. To find a SHIP counselor, go to the Web site listed in the URL field above. On the left side of the page, under "Search by Organization Name" you can select “SHIP - State Health Insurance Assistance Program” and then select a state or territory from the "Choose a State/Territory" option. Inquirers may also ask their doctor, social worker, or pharmacist about eligibility for other programs.
Categories: Health Insurance (includes co-payments)
State Pharmaceutical Assistance Programs
Free Line: 1-800-633-4227 (1-800-MEDICARE) (Responds to calls in English and Spanish)
State Pharmaceutical Assistance Programs (SPAPs) are intended to provide pharmaceutical coverage or assistance primarily to low-income elderly or persons with disabilities who do not qualify for Medicaid. By early 2009, at least 42 states had established or authorized some type of assistance program. Inquirers may also ask their doctor or social worker about programs for which they may be eligible.
Categories: Medication (includes co-payments)
Support for People with Oral and Head and Neck Cancer
Post Office Box 53
Locust Valley, NY 11560
Free Line: 1-800-377-0928 (Responds to calls in English only)
Support for People with Oral and Head and Neck Cancer (SPOHNC) is a nonprofit organization dedicated to addressing the emotional and physical needs of people with oral and head and neck cancer. The organization offers support groups facilitated by local chapters; current information on oral and head and neck cancer through its newsletter, "News From SPOHNC,"; free publications on topics such as treatment for head and neck cancer and dental care, recipes and resource guide to cope with eating challenges, and a survivor’s guide. SPOHNC also offers a National Survivor Volunteer Network, which pairs survivors or family members with volunteers who have had a similar diagnosis and treatment program.
Categories: Head and Neck, Oral, Peer/Buddy Programs , Support Groups
Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer
c/o The Nonprofit Center
89 South Street, LL 02
Boston, MA 02211
Local Phone: 617-938-3484 (Responds to calls in English only)
Free Line: 1-866-439-9365 (Responds to calls in English only)
Surviving And Moving Forward: The SAMFund for Young Adult Survivors of Cancer assists cancer survivors in the United States between the ages of 17 and 35 with their transition into a successful posttreatment life. The foundation distributes grants and scholarships in an effort to enable survivors to pursue their educational or professional goals, as well as to help pay for living, job search, and lingering medical expenses. Examples of expenses covered include a wide range of posttreatment financial needs such as undergraduate and graduate tuition and loans, car and health insurance premiums, rent, utilities, current and residual medical bills, fertility-related expenses, gym memberships, and transportation costs. Funds may not be available to all that apply. The SAMFund also offers outreach and information about the post-recovery transition to those approaching the end of treatment.
Categories: General Living Expenses, Health Insurance (includes co-payments), Lodging & Travel, Scholarships & Camps
Susan G. Komen for the Cure®
5005 LBJ Freeway Dallas, TX 75244 Free Line: 1-877-465-6636 (1-877 GO KOMEN) (Responds to calls in English and Spanish)
Susan G. Komen for the Cure® is a grassroots network of breast cancer survivors and activists working together to save lives, empower people, ensure quality care for all and energize science to find the cures. The 1-877 GO KOMEN helpline provides free, professional support services to anyone with breast health and breast cancer concerns, including breast cancer patients and their families. Susan G. Komen for the Cure has funded research grants and community-based outreach projects that focus on breast health education and breast cancer screening and treatment for the medically underserved. Staff can respond to calls in Spanish, some publications are available in Spanish. A version of their Web site is available in Spanish.
Categories: Breast, Scholarships & Camps, Advocacy
Teens Living with Cancer
1000 Elmood Avenue
Rochester, NY 14620
Local Phone: 585-563-6221 (Responds to calls in English only)
Teens Living with Cancer (TLC) is a Web-based resource for teens with cancer, their families, and friends. TLC focuses on teen issues, presents information about cancer and treatment, provides opportunities to interact with other teens living with cancer through an online community, and offers links to relevant sites. The TLC Web site is translated into many languages, and a translator is available to respond to e-mails written in Spanish.
Categories: Support Groups
Thyroid Cancer Survivors' Association, Inc.
Post Office Box 1545
New York, NY 10159
Free Line: 1-877-588-7904 (Responds to calls in English and Spanish)
The Thyroid Cancer Survivors' Association, Inc. (ThyCa) is a national nonprofit organization of thyroid cancer survivors, families, and health care professionals dedicated to educate, communicate, and support early detection for thyroid cancer. ThyCa offers a toll-free survivors’ line, publications, e-mail support groups, local support groups, a person-to-person network, newsletters, and conferences. ThyCa also offers a free packet of educational materials for newly diagnosed patients. In addition, ThyCa is active in raising funds and providing grants for thyroid cancer research. The organization has volunteers who are fluent in Spanish, and sections of the Web site are available in Spanish.
Categories: Other Cancers, Thyroid, Health Professional Referrals, Peer/Buddy Programs , Support Groups
Triple Negative Breast Cancer Helpline
Free Line: 1-877-880-8622 (1-877-880-TNBC) (Responds to calls in English and Spanish)
The Triple Negative Breast Cancer (TNBC) Helpline offers free support services to patients and families coping with a diagnosis of triple negative breast cancer. The TNBC Helpline is staffed by experienced oncology social workers with specific knowledge of triple negative disease. The Helpline was launched by a partnership between the Triple Negative Breast Cancer Foundation and CancerCare, a national nonprofit that provides free counseling and education services to individuals and families affected by cancer. In addition to counseling, TNBC Helpline staff can assist callers with information on other services offered by CancerCare, such as helping patients apply for financial assistance, transportation, and other social services.
Categories: Breast, Counseling
U.S. Department of Housing and Urban Development
451 Seventh Street, SW.
Washington, DC 20410 Local Phone: 202-708-1112 (Responds to calls in English only) Free Line: 1-800-569-4287 (HUD-Approved Counseling Agencies) (Responds to calls in English and Spanish) TTY Line: 202-708-1455
The mission of the U.S. Department of Housing and Urban Development (HUD) is to create strong, sustainable, inclusive communities and quality, affordable homes for all. The primary programs administered by HUD include mortgage and loan insurance, grants to help communities with economic development, job opportunities and housing rehabilitation, and HOME Investment Partnership Act block grants to develop and support affordable housing for low-income residents. Other programs include rental assistance, public or subsidized housing for low-income individuals and families, homeless assistance provided through local communities and faith-based and other nonprofit organizations, and fair housing public education and enforcement. HUD continues to play a major role in providing shelter for America's most vulnerable populations: the working poor, minorities, Native Americans, people with disabilities, people with AIDS, the elderly, and the homeless. Information on the Web site is also available in Spanish.
Categories: Lodging & Travel
The Ulman Cancer Fund for Young Adults
10440 Little Patuxent Parkway
Columbia, MD 21044
Local Phone: 410-964-0202 (Responds to calls in English only)
Free Line: 1-888-393-3863 (1-888-393-FUND) (Responds to calls in English only)
The mission of the Ulman Cancer Fund for Young Adults (UCF) is to enhance lives by supporting, educating, and connecting childhood patients 15 to 18 and young adults (ages 18 to 40), and their loved ones, affected by cancer. UCF offers remote (via telephone) and on-site (in Maryland) patient navigation programs that provide access to support resources and treatment information, and tips on effective communication with the patient's health care team. UCF provides support groups in Maryland and Washington, DC that are facilitated by professional social workers. Participants in the support groups include cancer patients, survivors, and spouses, friends, and children of people with cancer. UCF has a Peer Mentor Network that connects survivors, parents, and other young adults affected by cancer with one another for peer support and information exchange. UCF has a National College Scholarship Program and offers competitive scholarship awards. Applications for scholarships are available on the UCF Web site.
Categories: Childhood, Scholarships & Camps, Peer/Buddy Programs , Support Groups
Union for International Cancer Control
62 Route de Frontenex
Local Phone: + 41 22 809 1811
The Union for International Cancer Control (UICC) is a membership organization devoted to all aspects of cancer prevention and control. UICC members from 155 countries include major cancer societies, ministries of health, research institutes and patient groups. These organizations serve as resources for the public and may have helpful information about cancer, treatment facilities, and financial assistance.
List of Current UICC Members:
United Way Worldwide
701 North Fairfax Street
Alexandria, VA 22314 Local Phone: 703-836-7112 (Responds to calls in English only)
United Way Worldwide is the leadership and support organization for a network of community-based United Ways in 45 countries and territories. The United Way works to advance the common good by focusing on education, income stability, and health. Local United Way organizations create long-lasting community change by addressing the underlying causes of the most significant local issues. Common focus areas include helping childhood patients and young adults achieve their potential, promoting financial stability and independence, and improving people’s health. Information on the Web site is available in Spanish.
Categories: Childhood, General Living Expenses, International, Lodging & Travel, Medication (includes co-payments)
UnitedHealthcare Children's Foundation
Post Office Box 41 Minneapolis, MN 55440 Local Phone: 952-992-4459 (Leave a message) (Responds to calls in English only)
The UnitedHealthcare Children's Foundation is a nonprofit charity dedicated to improving access to medical-related services for children who have medical needs that are not fully covered by their insurance. The Foundation provides financial assistance in the form of a medical grant to be used for childhood medical services (16 years and younger) not covered or not completely covered by commercial health benefit plans.
Categories: Childhood, Health Insurance (includes co-payments)
Urology Care Foundation
1000 Corporate Boulevard
Linthicum, MD 21090
Local Phone: 410-689-3700 (Responds to calls in English only)
Free Line: 1-800-828-7866 (Urology Health Line) (Responds to calls in English and Spanish)
The Urology Care Foundation (UCF Foundation) supports research; provides education to patients, the general public, and health professionals; and offers patient support services for those who have or may be at risk for a urologic disease or disorder. The Foundation provides information on urologic disease and dysfunctions, cancer (i.e., bladder, ureter/renal pelvis, prostate, kidney, penile, testicular, urethral), bladder health, and sexual function. UCF provides an online directory service to find a urologist by geographic area. Information on the UrologyHealth.org Web site is available in Spanish, and some Spanish-language publications are also available.
Categories: Bladder, Kidney, Other Cancers, Other Male Reproductive, Prostate, Urinary System, Health Professional Referrals
Us TOO® International, Inc.
5003 Fairview Avenue
Downers Grove, IL 60515
Local Phone: 630-795-1002 (Responds to calls in English only)
Free Line: 1-800-808-7866 (1-800-80-Us TOO) (Support Hotline) (Responds to calls in English only)
Us TOO® International, Inc. is a nonprofit organization committed to helping men and their families make informed decisions about prostate cancer detection and treatment through support, education, and advocacy. Us TOO provides free publications (including videotapes/DVDs, Webinars, and books), a toll-free patient support line, more than 300 local support groups, online discussion communities, newsletters, a Circles of Love program (for companions and families of those with prostate cancer), and newly diagnosed patient resource kits. A limited selection of Spanish-language publications is available.
Categories: Prostate, International, Advocacy, Educational Programs , Support Groups
Vital Options® International
4419 Coldwater Canyon Avenue
Studio City, CA 91604
Local Phone: 818-508-5657 (Responds to calls in English only)
Free Line: 1-800-477-7666 (1-800-GRP-ROOM) (Responds to calls in English only)
Vital Options® International is a nonprofit cancer communications, support, and advocacy organization serving all age groups and cancer types with a mission to facilitate a global cancer dialogue. The Group Room cancer talk show will soon be available as an interactive HD-quality Internet television program. Archives of The Group Room radio show are available via the archives on the Web site. In addition to The Group Room, Vital Options’ most popular programs are also now available in video format: The Professor and the Survivor, a shared journey through a clinical trial, and Advocacy in Action, roundtable discussions with cancer advocates.
Categories: Advocacy, Educational Programs
Young Survival Coalition
New York, NY 10006
Local Phone: 646-257-3000 (Responds to calls in English only)
Free Line: 1-877-972-1011 (1-877-YSC-1011) (Responds to calls in English only)
The Young Survival Coalition (YSC) focuses on issues unique to young women who are diagnosed with breast cancer. YSC works with survivors; caregivers; and the medical, research, advocacy, and legislative communities to improve the quality of life for women age 40 and under who have been diagnosed with breast cancer. YSC's affiliate network provides peer-support and networking opportunities for young women in all stages of the treatment and recovery cycle. The Coalition also hosts teleconferences, conferences, and retreats for young women newly diagnosed with breast cancer, women diagnosed with metastatic breast cancer, and community volunteers interested in leadership development. YSC offers a SurvivorLink program that matches young women facing breast cancer with a survivor who shared a similar diagnosis. YSC also produces educational materials. Some publications are available in Spanish. Additionally, Spanish-speaking volunteers are available to serve as survivor matches in its peer-support program.
Categories: Breast, International, Advocacy, Educational Programs , Peer/Buddy Programs , Support Groups
Zero The End of Prostate Cancer
515 King Street
Suite 420 Alexandria, VA 22314 Free Line: 1-888-245-9455
ZERO The End of Prostate Cancers mission is to end prostate cancer. They will save lives and stop pain and suffering by advancing research, encouraging action and providing education and support to men and their families.